This is a rare form of cancer and it dosnt have a name but it had a name for the tumor. It’s called a Fibroblastic tumor, it looks like there are really only 18 cases of this.
So far what we have planned is this:
Surgery 1 - remove the contaminated tissue and the surrounding area including parts of my muscle and the skin. A sponge in my leg for a week and go back and get it removed. Then six weeks later surgery 2
Surgery 2- I will be getting a skin graft since the hole in my leg will be too large to fully heal. Then it will take another month or so for this to fully heal. I will also be unable to completely walk the next 2-3 months and I will be in a wheelchair.
He dosnt expect me to have a 3rd surgery but told me to plan just in case. Same for possibly staying overnight in the hospital for both surgeries.
So far here here is the following appointments I have in place.
May 1st - pre surgery testing to make sure I’m in good health since it’s an intensive surgery.
May 7th - first surgery
May 15th - post op check up
We plan on doing radiatio n/chemo but we will find out when surgery is all done. As for now after surgery is still unclear.
I truly appreciate any donations or any help that anyone can provide as this has been an extremely difficult time. The last 6 months has felt like years to get to this point. So thank you from the bottom of my heart.
this is all I know of for now and will update along the way as I know more.
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