This diagnosis is devastating to Jacob's family and friends. I have known Jacob's father since we were children. He is my best friend. My goal is to raise awareness for this disease and to contribute to research for a cure. Dr Stephen Kaler is currently one of the leading researchers in the field and any contribution made will go directly to his lab. I hope that knowing people are contributing towards research will provide at the very least a temporary repreive from the challenges the Omidbakhsh family has to face.
- Susan Boland
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