<div>After 7 years of trying to conceive we got our big fat positive on November 2nd, 2021. Finally our prayers had been answers after years of fertility issues. 

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<div>the first half our pregnancy went relatively well. Yes, I do have diabetes but baby was thriving and I was okay. So I considered that a win. 

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<div>Around <strong>25 weeks</strong> I started bleeding, not knowing if it was my urine or baby I went to the hospital. We found out I had a pretty bad kidney infection but that wasn't the worst part of the visit. 

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<div>The doctor saw I had <strong>Oligohydramnios, an extreme lack of amniotic fluid around baby. </strong>

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<div>Worried that I was <strong>PPROM</strong>, I was given a fancy helicopter ride to a better hospital. And admitted for for about 12 days. Thankfully I was not PPROM- and was able to go home while continuing to be monitored twice a week from my MFM. 

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<div>Over the weeks, my fluid level would go back and forth, up and down but never going over 3 centimeters. I was being tested for every possible reason for the lack of fluid- without answer. 

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<div>And over time we started to have a little more hope until the appointment where we were told that our son had '<strong>echogenic</strong>' kidneys (meaning they were showing up brighter on ultrasound.) This alerted my MFM that there may be renal failure or diseases of some kind causing the lack of fluid. 

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<div>This is when he decides to run a genetic horizon 274 test which would check for 274 diseases or genetic mutation that I may have. After two weeks it came back, I was a carrier of <strong>Autosomal Recessive Polycystic Kidney Disease</strong>. Not good.

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<div>So it was time to test James; if he was a carrier as well we would mostly have our answer. And two weeks later we received his results. And unfortunately he was a carrier for <strong>ARPKD </strong>as well. 

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<div><strong>ARPKD</strong> is normally fatal in newborn babies. It's like a more extreme case of Polycystic Kidney Disease <strong>PKD. </strong>

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<div>The issue with this disease is we won't know the extent of everything until he is born. While yes they are worried about his kidneys- it's actually his <strong> LUNGS </strong>that we are worried about. 

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<div>Babies need amniotic fluid for their lungs to develop. So Niko could be born with lungs that just can't be helped no matter what they do. 

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<div><b>In the case where he can breath, now we worry about his kidneys. We are looking at a long hard road ahead to maintain kidney function. It could be months before he is big enough to come home on a dialysis machine. Especially since our hospital is 3 hours away from our home.</b>
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<div><span>This is where we are asking for the help from our friends, family and everyone in between. We definitely will be needing some type of financial help here.This will </span><span>help us with short term living expenses, gas, and medical bills.</span><br />
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<div>We also are hoping to get a better vehicle that will be more reliable and accommodating to our situation. 
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<div>And also our other son Noah can't be with us in the Hospital most of the time. So we would like to be able to pay anyone who helps us provide care for him.

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<div>if you find it in your heart to help us- just know it means more to us than anyone could understand. Being able to focus all our energy on our son is our main priority and we are hoping that money will be a small concern but as you all know today with gas prices, food prices and everything else. It's going to be hard. 

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Faith Fajarito

Martina Slajerova

Megan Mulvihill

Claire Floyd

H Johnson

Anonymous

Help Niko (our little ARPKD warrior) & family ❤️

platform

Platform is iOS

Android

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English only

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Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

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OneTrust next-app audience

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Fund is in English speaking country

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Android v12.11.0 and above

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checkoutType

Payment method type group to be vaulted on success

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Share Text generation Skip Fundraiser

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Payment Identity Transfers ATO Risk Check (Targeted) - Production

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Version 9.2.1 and above

AUD Donation Upsell audience

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Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

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Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

NPO upsell education category

unclaimed charities

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AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

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Payment Identity Beneficiary Verification - Production

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Custom users

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Android v11.0.0 and above

Users Receiving Payments Paused Notifications

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Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

NPO recommendations prod

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Thank you V3 testing whitelist

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NPO upsell disaster relief category

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NPO upsell essential needs category

NPO upsell medical category

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Localized Currency

NPO upsell cancer category

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Survicate

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Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Help Niko (our little ARPKD warrior) & family ❤️

Still $13,337 to go. Help us build momentum.