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Yost Family Medical Fund

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Noah's Story:

It all started on December 23, 2014 when Jen and Ben had their 20 week ultrasound to find out the sex of their baby. Unfortunately, they received news that no expecting parents want to receive that the baby's bladder and kidneys were very enlarged due to a possible obstruction as well as extremely low amniotic fluid. They were sent to U of M the very next day (Christmas Eve) to see a high risk specialist. Fortunately, the ultrasound showed normal amniotic fluid levels, but the bladder and kidneys were still very enlarged and were compressing up into the baby’s chest.

Friday February 20, 2015 Jen was officially put on bed rest because she was experiencing high blood pressure, having some contractions and there was too much amniotic fluid. On Sunday, Jen was admitted to Munson Medical Center for preeclampsia. Her care team at U of M was immediately notified of the situation and they sent their private jet to take her to Ann Arbor. Once situated, her preeclampsia stabilized. Jen and Ben were then told that their baby had a large amount of fluid in his abdomen that they may have to try and remove prior to delivery. They goal at this point was to keep him in as long as possible. On Tuesday, the doctors were able to take Jen off of the 24 hour monitoring and will just monitor a couple times a day. Due to the fluid level, they estimated that the baby weighed around 9 pounds rather than the 2.5-3 pounds for the gestation age.

Wednesday February 25,  Jen’s preeclampsia level was rising again and she was dilating. The doctors decided to drain the excess fluid before labor started and were able to remove 500mL of urine. Soon after they were done, her contractions continued to get stronger and the doctors decided to come in and break her water. Jen delivered that evening her beautiful boy Noah Lee. He weighed 6 lbs 15oz at 29 weeks 5 days and she was only able to see him for a few seconds before he was taken to the NICU Stabilization area. During delivery, Jen lost a lot of blood (over 1.5L) and was later given a blood transfusion. This was when severe preeclampsia set in, but the doctors were able to get her stabilized. Jen spent a few hours in recovery and Ben was going back and forth between her and Noah. At that time, they did not have much information on Noah’s condition except for he was put on a ventilator and was doing okay through evaluations. A lot of testing took place over the next 24 hours along with a lot of praying for Jen and Noah. Jen was not stable enough to be able to see Noah again until Friday evening.

At this time this is what we know of Noah’s condition:

His lungs, heart and brain all look great and that is huge right now. He also has a good amount of urine output which means that his kidneys are functioning well. After looking at an ultrasound, they determined that both kidneys ruptured at some point which led to the fluid buildup. This is not a major concern at this point, but he could develop skin issues from the stretching and the fact that it is still under developed and very soft. This is something they will watch for. They also spoke with the genetics doctor and they sent testing in for the Beckwith-Wiedemann Syndrome. This can cause an enlarged tongue and abdominal wall defects, which Noah has both. Noah’s belly had a hole in it at birth and some of his intestines were protruding. The doctors were able to resolve this with a few stitches. They will be monitoring Noah for infections. This syndrome is pretty manageable and most outgrow the symptoms early in life.  He still has the bladder outlet obstruction, which is unrelated to the syndrome. It isn’t a complete blockage because he is urinating. They will likely go in and do a surgery to remove the blockage at some point, but it is not a pressing issue at the moment.

Noah has a lot going on and the neonatologist they talked to said that each of the issues he has are certainly manageable. He also said that all the issues combined makes things more challenging for Noah because he is dealing with a lot for being premature.

Jen and Ben are doing well at this time and are trusting that God is in control and they will continue to lean on him throughout this long journey. Noah will likely be in the hospital for several months and Jen will be down at U of M with Noah for the duration of his stay. This is where they need help since Ben will be traveling back and forth between Kingsley and Ann Arbor to be with their other two children. Their medical expenses along with Jen’s housing to stay with Noah are adding up quickly and will become extremely significant. Any contribution is greatly appreciated and will go a long way for a family that does so much for others.

We will do our best at keeping everyone updated on Noah’s Story as it continues to unfold.

Sincerely,

Yost Family and Friends
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  • Anonymous
    • $10 
    • 9 yrs
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Organizer and beneficiary

Anthony Kelly' Patton' Saxton
Organizer
Kingsley, MI
Jennifer Yost
Beneficiary

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