We are like most of you and never expected to need to share such a personal part of our lives on the Internet. It was not an easy decision and even if you do not give that is ok. Though you may want to visit to hear how Hailey is doing periodically. We chose today because is Rare Disease Day. If you know someone with a rare disease like EDS consider supporting them today and everyday.
There are many families with similar medical situations like us that cause medical bills to add up and they can see more on the horizon. Our goal is to help Hailey have the best care possible as she fights such a challenging and painful disease.
Thank you for stopping by and God Bless your families.
- Shawn Richardson
- Erin Hullinger
- Sue Grinius-Hill
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