Hailey's EDS Fund

Thank you for taking the time to read my story. My daughter, Hailey, has been diagnosed with a rare disease with no cure, Ehlers-Danlos or EDS. While such a disease is heartbreaking, Hailey is a gift to both Scott and I.   EDS is a very painful disease with many becoming addicted to pain medication.  Hailey, has decided NOT to use any pain medication.  She tries to manager her pain thru alternative pain control, such as headphones with loud music, pillow over her head, etc. and as a parent it is very hard to listen to your child cry and moan from pain. 

We are like most of you and never expected to need to share such a personal part of our lives on the Internet. It was not an easy decision and even if you do not give that is ok. Though you may want to visit to hear how Hailey is doing periodically. We chose today because is Rare Disease Day. If you know someone with a rare disease like EDS consider supporting them today and everyday.

There are many families with similar medical situations like us that cause medical bills to add up and they can see more on the horizon. Our goal is to help Hailey have the best care possible as she fights such a challenging and painful disease.

Thank you for stopping by and God Bless your families.

Donations

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  • Anonymous 
    • $1,000 
    • 60 mos
  • Shawn Richardson  
    • $100 
    • 60 mos
  • Anonymous 
    • $100 
    • 61 mos
  • Erin Hullinger 
    • $50 
    • 61 mos
  • Sue Grinius-Hill 
    • $200 
    • 61 mos
See all

Organizer

Scott Cheryl Hailey Vernon 
Organizer
Wappapello, MO
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