Eady is 12 years old and has Rett Syndrome. For her full story please visit her Facebook page Eady’s Journey. When you have a child with disabilities as profound as Eady’s, things don’t stay the same for long. As well as the short term changes in health, sleep, mood, eating, behaviours etc there are more long term changes due to the fact that children do insist on growing!!! Add to that puberty and it’s bumpy ride that’s for sure. 

One thing that is changing for Eady is her body shape and size and how that effects her posture. We know she has issues with her hips (that is constantly monitored) but also the position that she is happy to sit in is changing. It’s not something we are happy about but when you spend your life either sleeping in bed or sat in a chair, slowly your body prefers certain positions.  Due to all of this sadly Eadys off road buggy is nearing the end. Eady has almost outgrown it and she no longer tolerates sitting with her legs stretched out in front. In fact now, if we go out in it sadly she suffers with pain after so naturally we are now using it less and less. This means we aren’t doing many family walks which is super depressing.  Yesterday we had a demo from Mountain Trike after seeing a young lady go across the dales in one. Eady isn’t 100% at the moment but we managed a short ride out in the chair and took her across the field behind our house. The chair is awesome, it has three shock absorbers usually used on mountain bikes and it pushes so easily (which is another issue as I am now struggling to push Eady off road). But the best part was Eady looked comfortable and seemed to enjoy it. The chair should last her indefinitely as it can grow and adapt with her. Also, when she gets super heavy we can add a battery pack and have a boost for hills etc  We are now waiting for the quote and I’m putting it out there now I think it will begin with a 5 and be in the thousands…  We hate asking but we can’t stress enough how important an off road wheelchair is for Eady and us. Eady loves adventure and we love taking her on them.

Anonymous

Bruce Carpenter

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News wheels and Adventure for Eady

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News wheels and Adventure for Eady

Still £2,118 to go. Help us build momentum.