As a native Ugandan who has devoted much of his life to researching and understanding biological diseases, I am now embarking on a project for the summer of 2018, in order to do my best to combat sickle cell anemia and the devastation that it has caused in my home country. If detected early, the disease is easily controlled with a combined treatment of antibiotics and vaccinations. My hope is to pilot a localized system of newborn screening for sickle cell anemia in the district of Kiboga, Uganda, where the disease is very prevalent.
Following the example of Texas Department of State Health Services (TDSHS) and the kind staff of Kiboga General Hospital, we will introduce Isoelectric focusing technology, which is cost-effective and used for sickle cell screening in the United States, as a form of newborn screening to Kiboga. In addition, we will focus on developing a program of education and follow-up treatment, with a focus on building local capacity and long-term sustainability.
By donating to this GoFundMe campaign, you will be aiding children in Uganda who are susceptible to this easily manageable disease. In addition, you will also help build a localized system of screening which we hope will inform and inspire similar projects in nearby districts. $1000 will be spent on purchasing the isoelectric focusing equipment and $500 on training staff at Kiboga hospital. As someone who has personally experienced the loss that sickle cell anemia has caused, your support would be unspeakably appreciated.
-James Mubiru, PhD
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