A new Kidney for Wayan

A new Kidney for Wayan.

Why I need a machine to keep me alive.

Wayan's Story and needing a new kidney.


In 2010 I was attacked by a virus.

It was on Sunday so I found difficulty to find specialist doctor.

I went to public doctor day later.  It spread very fast. It circled half of my back and my chest.

It was very painful. I took a rest from my work because I can not wear clothes.  And in nine years till now I have not been able to return to work.

42633348_1570748141611805_r.jpeg(HSV on the back, still painful after 9 years)
When I visited the hotel doctor he suggested I go to specialist neurology doctor. I go to this doctor and got many medicine. I drink but there is no improvement. Next visit when the medicine finished, I return to this doctor. Again she gave me prescription.

Before picked up medicines from pharmacy, I show the prescriptions to hotel doctor. He was surprised, neurology doctor gave me a very strong medicine that will destroy my kidney.

Then I stopped take theses strong medicines. I did not go this doctor anymore.

I feel my whole body was hot. The temperature showed 39 celsius. I was sent to central hospital in Denpasar. Then I have been hospitalized for 2 weeks.

42633348_1570748347249727_r.jpeg(Purchasing products from Cellmaxx nutrition, Wayan centre)
2 specialist doctors checked my sickness. One heart doctor specialist and doctor internal medicine specialist.

For 2 weeks the doctors never explained what type of sick I suffer.

After 2 weeks in Sanglah hospital the internal medicine specialist doctor said that my kidney already stable.

He then let me go home and  want me to come on next Monday (in three days).

But on Sunday, at my house I feel unwell I talk many but my wife didn't understand what I talked about.

42633348_1570748767265601_r.jpeg(Bali surfing era 1977, Wayan centre)
And on Monday I was taken to Surya Husada hospital. They took my blood to check my Hemoglobin.  My HB was 6 (normal one is 12).

Specialist kidney doctor confirmed that I suffer chronic kidney stadium 5.  Then I have to do hemodialysis plus blood transfusion (2 bags of blood).

I thought will only for one time but it I am still using the machine regularly still now.

Then I got operation on my hand to make avesan for easier to inject anytime I do hemodialysis. 

It has been six months I did hemodialysis I met a friend said that there is a doctor from Jakarta who can stop to do hemodialysis.

He said also that his wife also treated by the doctor and can stop to do hemodialysis. I believing on him. Then the doctor came from Jakarta.

He checked whole my body. I paid the doctor for his flight (return tickets), return transfer to the air port accomodation and the medicine that he made in his laboratory.

He always brought a bottle of liquid medicine to be drink every day. I followed his instruction. 

It has been 3 months I did not do hemodialysis.  After 3months did not do hemodialysis, I feel very weak.  I can not keep my neck straight my eyes can not see very clear. 

Blood always come from my mouth when I slept.  I called the doctor from Jakarta to come but he never came until now.

Knowing that my condition getting bad, my son and my nephew brought me to the car and took to hospital. 

I only remember until here next I did not know anything, I was unconscious for 8 days.

42633348_1570748230732206_r.jpeg(Pandawa beach Bali with Wayan's wife and daughter, after one month in hospital receiving hemodialysis)
The doctor gave up.  My wife thought I was died already.  All my children cried for me.  Fortunately, God blessed me.

On the 8th day, my wife saw my finger started moving. She called the doctor, then to take out the toxin that already spread in my body, they took me to dialysis room. 

When the first time, I became conscious I found my toe and my hand was tight by the tread.

I was hospitalised for 3 weeks and do hemodialysis twice a week until now. That's the whole story of my dialysis.

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Organizer

Ben Diprose 
Organizer
Cowes, VIC
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