The National Down Syndrome Policy Group (NDSPG) supports people with Down syndrome to have a say in the formation of policy matters that impact their lives, campaigning for equal access, opportunities and provision to ensure equality and better outcomes at all stages of life.
The group has the support of individuals, self-advocates, charities, and DS organisations: all with the common aim of ensuring that the voices of people with Down syndrome is heard in society and reflected in government policy.
We also provide the secretariat to the All-Parliamentary Group on Down Syndrome (APPGDS).
The NDSPG considers five key areas of policy and provision:
- Healthcare and research
Our current focus has been to support the Down Syndrome Bill and its passage through Parliament to ensure that the Act is successful in creating positive change. The second reading of the Bill took place on 26th November 2021 and was passed uncontested. We cannot rest, however, and must work towards a successful delivery of the Bill through the third reading and then to the House of Lords, and Royal Assent.
This funding will allow NDSPG to pay for research, buy in consulting expertise and support the administration of the group and the All-Parliamentary Group on Down Syndrome.
The Founding Officers have provided and will continue to provide their time and expertise free of charge to the National Down Syndrome Policy Group.
We welcome any other support from groups and individuals.
Thank you for your support.
National Down Syndrome Policy Group - Changing The Narrative