Two year ago the doctors discovered a tumor behind Leilani's eye and in some parts of her skull (Langerhans Cell Histiocytosis). In January 2016, at the age of 3, she had a port put in to allow access for treatment. After 1 1/2 years (August 2017) this port was removed. She started kindergarten this fall. She loves and looks forward to her days in school. Shortly after starting school, the family was informed that they would have to have another port put in. Soon after this, she started chemo treatments. The original tumor is very rare and the complications that have resulted (Central Diabetes Isipidus) are also very rare. CDI requires lifelong medication and monitoring. It also complicates most of her treatments. Sadly, Leilani has had to miss most of her kindergarten year. Her parents travel from Vancouver Island to the mainland for treatments. Unfortuantely, the costs of travelling to treatments in Vancouver and back to the island are quite high. Also, as many of you know, prescription medication is not covered under the Canadian Health Care system. This, along with the travel costs and the missed work hours have added up.
Leilani has had a more severe reaction to the chemo this time around. The nausea and body aches that accompany treatment have been both physically and emotionally taxing. Leilani is only 5 years old.
I am starting this page in hopes of helping make this journey as comfortable as possible for Leilani, and to alleviate the financial stress put on her parents.
(All the donations go towards Leilani’s mother, Justina Ekl)
- Jeff & Candice
- Lexia Susann
- Olivia Lowe
- Karen Danudjaja
- Ryder Bachman
Organizer and beneficiary
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