My Mums treatment
Donation protected
Hey guys, so many of you may know that last year in May, my mum was diagnosed with Motor Neurone Disease (also known as ALS). It has been quite the journey the last few months exploring treatments and support. In the midst of navigating the world of MND, she has had the opportunity to explore the possibility of having Lyme Disease.
This process in itself has been quite the challenge as our country does not support anyone that has chronic Lyme, or even anyone that brings it back from another country that carries the Pathegerm. We have had MANY supporting blood tests and scans that have led us to the point of now seeking lengthy treatment overseas.
Mum has been fortunate enough to have found an Australian doctor working in San Francisco that she has regular Skype appointments with. She that has stressed the importance of investing their time and money into visiting a clinic in Cyprus, that will over the course of 6 weeks do vigorous cleansing and testing in order to get her body ready for the next course of action (which is a whole other battle to find a doctor here to prescribe the antibiotics to get rid of it).
My dad works for himself, which means having 8 weeks off to be there to support mum will be tough financially for them. Because the Australian government is so backward and behind the times in accepting this disease, any expense spared to treat this disease will be out of their own pocket. The cost can potentially sky rocket, dependant upon whether they may have to fly to the United States for the antibiotics once phase 1 of treatment is completed in Cyprus.
Mum has personally heard of many stories of people HERE in our own country who have been diagnosed with diseases such as MND, Alzheimers, MS, and Chronic Fatigue that have actually turned out to be Lyme Disease. Lyme presents itself and mimics disease such as those listed above, therefore, many people have also died from not receiving treatment.
Mum is unfortuntly presenting with Motor Neurone, so if its not treated she will most certainly continue to go down hill and present with the typical MND symptoms as she already is experiencing.
This is a fast progressing disease so we are planning on taking action immediately to stop the disease progressing and threatening her life.
My goal here is to raise enough money to ease a little bit of the stress associated with funding this themselves. Logistically mum really needs to be travelling at least business class as she cant sit upright for long periods of time which as you know costs A LOT of money!
Thanks so much for taking your time to read this all. I have included two links below. the first one has some info about Lyme disease in Australia, and the second is for the clinic in Cyprus she will need to go to.
http://www.lymedisease.org.au/about-lyme-disease-2/
https://neomedinstitute.com/
Thanks again! And please once again...theres no pressure at all in sharing or donating!!
Trina & Missy
x
This process in itself has been quite the challenge as our country does not support anyone that has chronic Lyme, or even anyone that brings it back from another country that carries the Pathegerm. We have had MANY supporting blood tests and scans that have led us to the point of now seeking lengthy treatment overseas.
Mum has been fortunate enough to have found an Australian doctor working in San Francisco that she has regular Skype appointments with. She that has stressed the importance of investing their time and money into visiting a clinic in Cyprus, that will over the course of 6 weeks do vigorous cleansing and testing in order to get her body ready for the next course of action (which is a whole other battle to find a doctor here to prescribe the antibiotics to get rid of it).
My dad works for himself, which means having 8 weeks off to be there to support mum will be tough financially for them. Because the Australian government is so backward and behind the times in accepting this disease, any expense spared to treat this disease will be out of their own pocket. The cost can potentially sky rocket, dependant upon whether they may have to fly to the United States for the antibiotics once phase 1 of treatment is completed in Cyprus.
Mum has personally heard of many stories of people HERE in our own country who have been diagnosed with diseases such as MND, Alzheimers, MS, and Chronic Fatigue that have actually turned out to be Lyme Disease. Lyme presents itself and mimics disease such as those listed above, therefore, many people have also died from not receiving treatment.
Mum is unfortuntly presenting with Motor Neurone, so if its not treated she will most certainly continue to go down hill and present with the typical MND symptoms as she already is experiencing.
This is a fast progressing disease so we are planning on taking action immediately to stop the disease progressing and threatening her life.
My goal here is to raise enough money to ease a little bit of the stress associated with funding this themselves. Logistically mum really needs to be travelling at least business class as she cant sit upright for long periods of time which as you know costs A LOT of money!
Thanks so much for taking your time to read this all. I have included two links below. the first one has some info about Lyme disease in Australia, and the second is for the clinic in Cyprus she will need to go to.
http://www.lymedisease.org.au/about-lyme-disease-2/
https://neomedinstitute.com/
Thanks again! And please once again...theres no pressure at all in sharing or donating!!
Trina & Missy
x
Organizer
Katrina Bossard
Organizer
Sandy Point NSW
