This fundraiser is located in
Boone, NC

My Hope For Normalcy

We're asking for your help in meeting a need we can't do alone. For more than a year I was plagued with symptoms that sent me from one specialist to another searching for answers & finally in early 2013 I was diagnosed with Primary Progressive Multiple Sclerosis, the most aggressive form of the disease. Multiple Sclerosis is a neurological & autoimmune disease where your immune system attacks the Myelin (protective coat on nerve fibers) in your brain interrupting communication between your brain & body. Every part of your body is effected by this disease & in the last 7 yrs I've had declines & plateaus as the disease has progressed. I've been diagnosed with a  other health problems such as epilepsy & Chron's that stem from the Multiple Sclerosis. Although it's not fatal we do know that there will come a day when I'm confined to a wheelchair. It does effect quality of life,  I have tremors, muscle spasms, weakness on my left side & intolerance of extreme temperatures to name a few. At the end of 2019 we were given a small glimmer of hope at slowing down the progression in the form of an infusion Ocrevus. Targeted for my type of Multiple Sclerosis it can't reverse the damage that's been done but it can slow down the rate of progression of disability & improve my quality of life. I received my first infusion last December just before Christmas, I was in a wheelchair because the muscle pain of walking was more than I could handle. Although it can take a few years before you see the full effects usually 12 weeks is when you might notice a difference & by my second infusion in May we had a glimpse of a life In Charleston we were blessed with not only an MS Clinic but because of a combination of things I was able to receive this medication & my medical bills were taken care. It was such a blessing because in a short time my medical expenses could easily excede what our annual income was. Ocrevus is done every 6 months & my next round is coming in December.
Our move to North Carolina flipped this upside & we're asking for your help. Chris' insurance where he works won't take effect in the time for us to get the pre-approval for the insurance company to cover the cost. We're asking for your help in meeting this need. 
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