<div>Titans JOURNEY: BATTLING Combined Central &amp; Peripheral Demyelination - 2 diseases which are Atypical Spinal Multiple Sclerosis with area postrema Mimicry and Chronic Inflammatory Demyelinating Polyneuropathy with secondary axonal burnout.
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<div>Hello, my name is Titan, please read what happened below.
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<div>In 2022, my life took a devastating turn. I suffered a severe spinal injury, a confluent lesion from t8-t12 extending into the conus medullaris alongside area postrema Mimicry which left me vomiting for over 2 weeks.
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<div>I spent 2 weeks in st Thomas hospital where i was told even after presenting with blurred vision, bladder and bowel incontinence, spasticity in my lower abdomen and legs that there was nothing wrong with me.
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<div>After 3 years suffering through medical racism and gaslighting snd being told I dont have multiple Sclerosis and the NHS trying to pin a diagnosis of neurosyphiis because as a black Nigerian person born in west Africa I have treponimal antibodies naturally.
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<div>I was admitted to hospital over easter 2026 because of my Area Postrema syndrome and this triggered a formal investigation within my nhs trust after I put thriugh a pals complaint , definitive tests have now been done to show that I have what is called Combined Central and Peripheral Demyelination, more specifically atypical spinal multiple Sclerosis &amp; chronic inflammatory demyelinating polyneuropathy with secondary axonal burnout. The Nhs say they are awaiting further tests as to secure a more definitive diagnosis but this is putting me directly at risk of becoming wheelchair bound in the next few years.
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<div>I am desperate for your help in saving my life and my quality of life, because of the permanent nerve damage in my sensory nerbes in my legs i can barely walk and no longer run and I cry everyday living with the fear of not being diagnosed and treated.
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<div>I DONT WANT TO BE WHEELCHAIR BOUND because of the medical racism im enduring under THE NHS.
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<div>Living everyday is a struggle because living with 2 neurological disease is a literal living nightmare that no person should endure.
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<div>The pain is so overwhelmingly bad alongside my fatigue that doing anything physically feel practically impossible a lot of times leaving me bed bound most days.
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<div>I desperately need access to specialist care and treatments, specifically B Cell depleting therapies and IVIG. I have been suffering for over 4 years and without the help of generous people like you I cannot afford the care I need to live with some semblance of dignity and hope for a brighter future.
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<div>This is why im asking for your kindness, your support, your charity whether its through a donation or in sharing my story which could make an incredible difference in my life. Every contribution no matter how small brings ne closer to a diagnosis for medical and treatment I need to stay alive and keep my quality of life aswell.
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<div>Thank you gor reading my story
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<div>With Faith, Love &amp; Gratitude
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<div>Titan
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Anonymous

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CCPD - Spinal Multiple Sclerosis & CIDP with axonal burnout

CCPD - Spinal Multiple Sclerosis & CIDP with axonal burnout

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