As most of you know my dad was diagnosed in November 2017 with ALS. After a year of watching my dad struggle with walking and speech we are happy to know what is finally going on. Unfortunately, while we are glad to finally have some answers we know that an ALS diagnoses, while different for everyone diagnosed, is a long and hard battle.
Our family is extremely happy with his multidisciplinary team through Rush University in Chicago, IL. My parents are in the process of making sure my dad has the best insurance and is covered for all of his medical needs. Unfortunately, as we all know, dealing with insurance is no easy task.
I wanted to start a page to help support my parents as they go through the unknown process of his horrible disease.
At his first ALS Clinic in December I started to get an idea of what my parents will financially be dealing with in the future. Examples of those needs discussed:
- A customized wheelchair to help my dad get around the house. The company will design a chair not only to his body but to his future needs.
- Doctors Appointment
- Lab Work
- Eventually, either at home care or an assisted living community
I know that while my parents have made adjustments in their home to work for my dad in the time being, I also believe that in the future they will need to meet with a realtor and discuss their best options in relocating.
Please keep this page a secret. I would love to eventually surprise them with the generosity and love that will be filled on this page.
Anthony and I would like to thank everyone in advice and appreciate all the love and kind words.
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