Money to help my niece with SMA

My niece was recently diagnosed with a devastating neuromuscular disease Type 1 Spinal Muscular Atrophy, which was a fatal diagnosis before but now there is a vaccine that can help prevent progression. 

Luckily, the treatment for SMA (which costs $750K in just the first year) is covered by insurance. She's going to be needing these shots every four months for the rest of her life. Insurance does not cover extra costs for care, including therapy and other non-medical costs like transportation to Columbus for treatments. My brother works full-time but has already missed a lot of days because my niece has been in the hospital the entire week. My sister-in-law is unable to work now because my niece needs 24 hour care. This is the first time my family has faced anything like this and it has already been really difficult for us. We appreciate any and all donations. These funds will be used to cover the cost of care and therapy, as well as non-medical costs so that we can give Daijla a better chance of enjoying an active life that most children enjoy. Also, if you cannot contribute financially that's totally fine. We also need as much prayers, wishes and positive thoughts that we can get. 

Thank you <3

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Organizer and beneficiary

Rula Issa 
Dayton, OH
Elvin Dedic 
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