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<div>My name is Kacey and I am 1 year old. I was diagnosed with Prader-Willi syndrome. I have been hospitalized at birth since I was unable to feed myself, I have no strength due to my severe hypotonia (unable to operate my upper body muscles). I am what they call the Floopy baby. I'm back home and still struggle to feed normally. I am very very small for my age.. I have the weight of a 7 months old. My life will be full of challenges and already at my young age, it is filled with medical appointments and followed by a multidisciplinary team (physiotherapy, occupational therapy, nutritionist, orthopedics, neurology, ENT, endocrinologist, genetics and more to come). Every day, my mom has to do exercises with me that make me uncomfortable because for me just trying to lift my head is difficult! My brain sends the information to my muscles but it doesn't work properly and not for a long period of time. I get exhausted 10 times faster than a normal baby. It’s like trying to follow a Cross-Fit workout from a professional but I’m a beginner. Because of that I do sleep apnea and I have a CPAP machine at night that help me breathe correctly. I have and will have delays in growth, motor and mental development for the rest of my life. I will never be 100% independent since my syndrome affects my brain, I am already classified in the category (Intellectual Disability (ID), Autism Spectrum Disorder (ASD) and Physical Disability (PD)). Recently, I saw my endocrinologist and so that I can have a chance to develop a little more normally, they prescribe me growth hormones. It  increase my chances(strength )by around 26%, it's not much but for me it's worth all the gold in the world. I will be able to 100% bottle feed, eat food( not just puree) without chocking and start to be able to use my muscles to turn around, play, crawl, sit and maybe walk before my prognosis which is 18-24 months and more. I wish I could be like the other kids but I know I never will be. But with growth hormones, I will be able to be much more and I want to enjoy my life even if it will be filled with pitfalls. My problem is that my parents cannot afford to pay the full cost of my daily injections until the end of my puberty which is $2000 per month. My dad is a truck driver and he already works 60-70 hours to provide for us (my sister, mom and me) and Mom will not be able to return to work due to my condition. No day care want to take me because my situation is risky. There is no assistance program that applies to us so we do not have financial assistance available. My parents are desperate and only want the best for me.



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<div>So, I ask you from the bottom of my heart to please help me obtain my growth hormones so that I can live a little happier and above all play a lot!



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<div>Signed Kacey Walter and written by Mom.



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Becky Owens

jones.barbara222@gmail.com Jones

Arianne Bilodeau

Anonymous

Emily MacCuaig

Joel Hoelscher

Kelsey & Andrew MacCuaig

Rich k Gallagher

Monique Lorenz-Healey

Kelly Allan

Marie-Josée Plante

Jonathan Lumer

Lise L'Archevêque

Carole Quintal

martine olivier

Kacey & Prader Willi syndrom

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

locale

fund country is US and user language is English

personId

comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

paymentProcessorAccountId

fallback mode accounts

proCampaignId

p2p legacy startfundraising page

AMP24 New Funds Only PROD (DO NOT MODIFY)

countryCode

charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

currencyCode

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

writePath

Stream Notification

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

Users Receiving Braze KYC Validation Failed

Native 11.3.0 and above

Influencer - Prod

US fundraisers and US users

ai_title_page

anyword

openai

control

manual_entry

userEmail

template_id

userId

fundUrl

isCharityCo

email

appVersion

shouldBucketIntoExperiment

partnerId

donationCadence

isActiveFundraiser

isPartner

isMobile

npoProfileOptIn

fundIsLinkedWithMeta

hasSessionDonation

isCampaignOwner

fundHasInstagramDeepLink

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

userCurrencyCode

Localized Currency

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Kacey & Prader Willi syndrom

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