Molly, the diamond amongst our rough days.
This little gem of ours was born in March 2015 with a rare chromosomal disorder Trisomy 12p. She was also born with a dangerously low platelet count and suffered a significant brain haemorrage due to this, causing multiple delays in all areas of her development.
As brand new parents no one expects to have a hurt child and we were completely out of our comfort zone, living in and out of hospitals and trying to adjust to this new life with a medical fragile child at the same time.
We were on a mission to find answers to our forever growing number of questions.
We were fortunate enough to be told of 'The institutes for the achievemnet of human potential' (IAHP)
IAHP are a not-for profit organisation established over 75 years ago. They are based in Philadelphia and are known internationally for their pioneering work in child brain development and their programs to help brain injured children achieve wellness.
With many thanks to our friends and family we were able to attend their 'What to do with your brain injured child' coarse in Melbourne of August/September 2016. This coarse opened us up to a world of information and answers we'd been waiting so long for.
Basically IAHP showed us that 'The brain grows by use' and with a lot of dedication and hard work on our part, we can actually grow Molly's brain. With a large part of Molly's brain now gone completely we are able to find different pathways to help Molly reach milestones.
With this new information, we came home and started a home program 7 days a week that involved working on and improving all of Molly's symptoms caused from her brain injury: Visual, Auditory, Tactile, Mobility, Language & Manual injuries.
We've recently been in contact with the staff at IAHP and have been accepted into the Intensive treatment program which is in August of this year in Philadelphia.
This invovles 5 jam packed days at the institutes where Molly will be assessed on her progress since starting the home program, 2 days of lectures for us lucky parents and the staff teaching us the rest of the week new programs designed especially for Molly which will include her physical, intelligence, physiological and nutrition just to name a few.
Molly's visible progress has been extremely encouraging and getting Molly over to the US for evaluation is now something we realise we have to do, the sooner the better.
The reality unfortunately for us is that finacially we arent going to get there on our own.
Benny and I have decided to put our pride aside (to pick up again at a later date) and reach out to our friends and local community in hopes that we can achieve this goal for our daughter, Molly.
No matter the contribution/donation, it will help us be one step closer to America and give our family the chance to greatly improve the quality of Molly's life. Benny, myself and of coarse miss Molly will be forever grateful.
The amount of dollars raised will cover:
accomodation for 7-9 days