RAISING FUNDS to pay for an independent medical evaluation of my adult, disabled son, Dominic. This is a crucial step in my fight to regain guardianship and bring Dominic home to his family, where he belongs.
BACKGROUND: My name is Nancy Pantoni. I live in Pittsburgh, PA, and I have been fighting for the past 10 years to bring my adult, disabled son home! My son, Dominic, was born with a genetic disorder called Deletion 22Q Syndrome, which causes life-long physical and mental impairment. I am a licensed, practicing nurse, and I believe my son is not receiving proper medical care for his condition. He belongs home with his family, who loves him very much, but so far the courts have refused to return guardianship back to me, his loving mother. It's unconscionable that any loving parent is denied this basic human right to be in charge of their own child's care and--and not be allowed to have their adult disabled child live at home!
A GLIMMER OF HOPE: Recently, the court agreed to allow me to have my son INDEPENDENTLY EVALUATED by a doctor of my choosing! This is a major victory because a new doctor might determine that Dom is not receiving proper care for his condition, and that he indeed would be better off living at home with his devoted mother, rather than in his current situation in a group home.
THE NEED: The only problem is that I need to raise $3,000 to pay for Dom's independent medical evaluation. This is a crucial step in persuading the judge to restore guardianship to me and to bringing Dom home! He desperately misses his family, and we miss him.
THE DOCTOR: I have chosen Dr. Bruce Wright to perform the independent evaluation. Dr. Wright is the chair of the Psychiatry Dept. at St. Clair Hospital in Pittsburgh, PA. He is a well respected physician, who has experience working with the court system. Unfortunately, Dom's health insurance will not pay for an independent medical evaluation. Therefore, the cost is on my shoulders, and sadly, I don't have the funds. This is why I am turning to you, my friends, for help.
This is the end of the line for my family. Without this evaluation we are officially out of options. Your support will help Dom return to his family after 10 years of this bureaucratic nightmare.
Learn more about Dom's story at justice4dom.org.
THANK YOU IN ADVANCE FOR YOUR HELP!
Nancy Pantoni, Dominic's Mom
P.S. I was featured in an article on the PublicSource news website 5 years ago.
I've been fighting for my son for the past decade! Please help if you're able. Thank you.
Who knows best? Dispute over disabled
man's care magnifies guardianship’s complexities
By Halle Stockton | PublicSource | April 6, 2014
WHAT IS DELETION 22Q SYNDROME?
EXCERPT FROM THE INTERNATIONAL 22q11.2 FOUNDATION WEBSITE: The 22q11.2 deletion syndrome is caused by a missing section (microdeletion) of chromosome 22 which is present from the time a child is conceived. Present in 1 out of every 2,000-4,000 live births, in 1 in 68 children with congenital heart disease, and in 5 to 8 percent of children born with cleft palate, the 22q11.2 deletion is almost as common as Down syndrome, a widely recognized chromosomal disorder.
The deletion has the potential to affect almost every system in the body and can cause a wide range of health problems. No two people are ever exactly alike, even when they have the same syndrome, and not every person with the deletion is affected in the same way.
Though not always present, the key characteristics of this syndrome include combinations and varying degrees of: heart defects, palate differences, feeding and gastrointestinal difficulties, immune system deficits, growth delays, kidney problems, hearing loss, low calcium and other endocrine issues, cognitive, developmental and speech delays, behavioral, emotional, and psychiatric differences (ADHD, autism, anxiety, etc.).
Learn More at: http://www.22q.org/about-22q/new-diagnosed/deletion/.
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