Apoya el síndrome de Jeremy

Quieres unirte para marcar la diferencia? Estoy recaudando dinero para beneficiar a 5p-Society, y cualquier donación ayudará a tener un impacto. Gracias de antemano por su contribución a esta causa que significa tanto para mí.

Hace 17 años fuimos bendecidos de conocer mas acerca de este síndrome de primera mano. Mi niño Jeremy nació con este síndrome, y con mucho temor a lo desconocido.

Ya que no hay, ni había mucha información de el, ya que es muy raro 1 de cada 50,000 niños nacen con el.

Afecta de diferente manera a cada niño.  Una característica unica es el llanto al nacer  parecido a al maullido de un gatito.

Mi niño no a podido desarrollar el balancearse para poder caminar, de igual manera puede dar pasos asistido.

Es alimentado por una sonda y con terapias a podido aceptar algunos bocados. Muchas cosas mas que le falta por alcanzar.

Pero como niño con necesidades especiales. Un paso ala vez, una meta ala vez, un día ala vez. Muchas Gracias 


Want to join me in making a difference? I'm raising money to benefit 5p- Society, and any donation will help make an impact. Thanks in advance for your contribution to this cause that means so much to me.

17 years ago we were blessed to learn more about this syndrome firsthand. My son Jeremy was born with this syndrome, and with fear of the unknown.

Since there wasn't, nor is  much information on this syndrome, since it is very rare 1 in 50,000 children are born with this syndrome.
It affects each child differently. One unique  characteristic is the cat cry at birth.

My child has not been able to develop balance to be able to walk,  he can take assisted steps.

He is fed by a g-tube and with therapy he has been able to accept a few bites. Many more things still to be achieved.
But as a child with special needs. One step at a time, one goal at a time, one day at a time.
Thank you

Donations

  • Anonymous 
    • $20 
    • 1 mo

Organizer

Yalila Hernandez 
Organizer
Ozone Park, NY
5p- Society 
Registered nonprofit
Donations are typically 100% tax deductible in the US.
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