Hi everybody Im sorry to have to ask this but could you please like share and possibly even make a small donation to help me. I am now to big for my buggy.
This time last year I was measured by the HSE for a new wheelchair. My Mam has being contacting the HSE regularly advocating on my behalf for a new chair but it has not been forthcoming. The HSE say they have insufficent funds.
At this point my buggy is unsafe for me and I am at Risk of serious injury to myself and my implanted Shunt which is essential for my Survival. Mam has managed to raise almost 75% of the cost of the chair we just need another €1500 and every little donation will help to make everyday life safer for me.
Michael is a 5 year old little boy from Blarney, Co. Cork, his Mum Orla is from Crumlin in Dublin and his dad is from Blarney.
At 26 weeks pregnant we were told something was wrong with Michael. Scans and an MRI confirmed Michael had hydrocephalus. We were told to expect the worst. While pregnant I organised my sons funeral. Michael was born at 37 weeks gestation via C-Section. He was so beautiful.
Michael was brought to NICU so they could keep an eye on him. At 3 days old he travel to Dublin he had brain surgery at 5 days old. After one week he was transfered back to Nicu where he stayed till he was 1 month old. Michael was sent home with Palliative Care.
At 4 months old we rushed him to hospital. He was blue and barely breathing. I knew first aid and kept him breathing till we got to hospital. It is on the visit that we found out Michael could not eat or drink safely and was needing to be tube fed. Michael was given NG feeds and we trained up on how to feed and replace tubes. Michael still isn't able to eat like you or me. He now has a Mic button as the NG tube started to become a challenge every time he pulled his tube out. Nearly 5 years later he is still with us and we treasure every minute. Although he can not walk without the aid of his walker you can see the fight and determination he has in his eyes to do it.
His determination to finish his daily (up to 2 hours) physiotherapy is key to the power he has. Because Michael spends so much time in doors exercising he loves getting out and interacting and socialising with friends and family. He loves road trips even the long ones to Dublin and to his wonderful respite in Fermanagh in the North.
Michael was born in November 2012 with a condition called L1 syndrome which causes hydrocephalus, this is commonly known as water on the brain. This has left a devastating effect on Michael's brain. Visit and like his Facebook page to keep up to date with his adventures https://m.facebook.com/Superman-Michaels-Little-Steps-961349023877893/