Mia's Medical Expense

Mia was diagnosed with neurofibromatosis (NF1) about two years ago. NF1 is a genetic disorder that causes tumors to grow along nervous and skeletal systems, including optical nerves, auditory nerves, brain and spine. It can cause learning disabilities, skeletal abnormalities, blindness, deafness to name a few. There is currently no cure for neurofibromatosis.

On January 13th, Mia suffered a massive seizure and was rushed to the Stollery Children's Hospital. They found a large optical pathway glioma along with a 3 cm diameter tumor in her temporal lobe. The tumors was the cause of the seizures. The tumors have also caused her to start puberty at the age of 5. Mia will be on anti-seizure medication and hormone therapies until everything is under control.

Mia will be undergoing 70 weeks of chemo therapy. Her parents will have to take her into the stollery once a week for 70 weeks. There will also be years of follow up and screening to ensure that they have stopped the current tumors and that they catch any new tumors in the future.

At this point the goal is to stop the growth of the tumors and manage Mia's symptoms the best they can. Mia doesn't understand what is happening and is actually really good with the doctors and nurses. Very cooperative and just kind of goes with the flow. She is such an amazing little spirit and just takes things in such stride. Mia's mom is so thankful for her loving little spirit. Unfortunately she will have a life of doctors and tests and procedures, but mom doesn't see that crushing her little spirit at all.

This page has been set up with the hopes of alleviating some of the expenses that come with having to drive to appointments, as well as covering the costs of medications that their current insurance plan does not cover. Thank you for your support.