Melanoma Advocacy Volunteer Trip

No parent should ever have to hear, "I'm so sorry, your child has cancer. We'll do everything we can." Ever since we heard those words on Sept, 14, 2016 our family's world has been flipped upside down. Pediatric melanoma is rare, but on the rise. About 500 kids are diagnosed each year in the US. We immediately searched for other melanoma families to connect with and came upon the Melanoma Research Foundation. The MRF has been a wonderful source for us as Ross continues his fight and we feel called to volunteer for this wonderful organization that has helped us so much. 

Our 13 year old son, Ross, was diagnosed in September 2016 with Stage 2b melanoma on the back of his ear. Ross had successful surgery and reconstruction and a negative lymph node biopsy showed the cancer had not spread. In July of 2017, our fears were realized as a lump on his neck was diagnosed metastatic melanoma spread to his lymph nodes, now stage 3C.  Ross had a full neck dissection and is now in his year long adjunct immunotherapy treatment. Ross has amazing medical teams at both Moffitt Cancer Center and Blank Children's Hospital working together to get him the very best care. He never complains, never asks "why me?", no pity parties here. Ross is pretty cool. 

Did you know that only 4% of all government allocated cancer research funds go to pediatric cancer? That. Has. Got. To. Change. Ross and our family has the opportunity to volunteer for the Melanoma Research Foundation Advocacy Summit and Capitol Hill day in Washington DC, March 3-5. Through this opportunity, Ross will meet with congressmen and women on Capitol Hill and share his story while advocating for melanoma awareness and funding.  We will fight for each and every melanoma warrior. 

Please donate to our family's travel expenses Go Fund Me campaign as we head to Washington to fight for Ross and every melanoma warrior that cannot be there to advocate for themselves! The funds raised will help alleviate some of the financial burden of this volunteer trip for our family. We appreciate all the continued support for Ross, our family and all  melanoma warriors!

Please follow Ross's FB support page, Rally 4 Ross.
#rally4ross
#morethan4
#beatthebeast
#wewearblack4ross
#melanomaawareness

Donations ()

  • Anonymous 
    • $50 
    • 27 mos
  • kari karpinske 
    • $100 
    • 27 mos
  • Shanon & Liz Phillips  
    • $100 
    • 28 mos
  • Erin Hoelscher 
    • $50 
    • 28 mos
  • Marilee McDonald 
    • $25 
    • 28 mos
See all

Organizer

April Muhlbauer 
Organizer
Polk City, IA
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