Medical Expenses and More for Baby Khyri
Donation protected
This Beautiful, Wonderful gift from God suffered this trauma from the hands of someone who was supposed to love and protect him.
Prayers and donations would greatly be appreciated for Dezana Ware and Baby Khyri as they have a very long road ahead of them.
Any prayer or donation is not too small. We appreciate and thank you in advance.
Please share!
"Baby boy you are so strong mommy is so proud of you ❤️ I ask for everyone to continue to pray for Khyri and him being able to breathe on his own, clear his air ways on his own and to not need the ventilator anymore. Every week we have a care conference that i dread, they always start off by telling me the good and how he’s progressing and what they didn’t expect then deliver the not so good. So far he’s opened his eyes a few times, grabbed my fingers, regulated his own sodium and sugar levels and every now and then when he’s not on pain management or sedation he’s breathed above the ventilator however it hasn’t be consistent enough for them to think he won’t need it going forward. They presented the idea of a Tracheostomy and my heart dropped. The said the breathing tube he has now isnt secure and can damage his vocal cords if left in for too long. They said to picture him possibly not knowing I’m his mommy, not smiling or even hearing his voice. I got real quite and to myself, I’ve went into the bathroom and cried a couple times and even punched the air a couple times.
Early this morning his breathing tube slipped out of place which doctors were warning me would happen and suggested a Tracheostomy again, then told me to think about if that would be the life I want and see for my baby and if not then to think about possibly letting him go. They’ve told me him all of a sudden being able to do this on his own over the weekend would be unlikely. Even though they don’t put a time limit on him they in some ways to me put a time limit on him based upon their science and their experience. I know it’s doctors jobs to deliver the hard news but it’s also mommies job to stand firm on my faith and know that God can do the impossible. He WILL breathe on his own, he WILL clear his own airways and he WILL have a meaningful quality of life. I’m not going to act like this is easy by any means because it’s not but what I will say is that I’m expecting a miracle and in Gods timing not doctors. I will not give up on my baby he has fought too hard and God knew my baby before he was placed in my womb and he is an intentional God he doesn’t do anything by mistake even though I can’t see it clearly now I know he is doing something amazing. I ask everyone to continue to stand with us in prayer, sending positive vibrations and energy because we definitely feel it. I can’t wait to see the works God does through my child. Thank you everyone who has reached out to me and been so genuine and caring you don’t know how much that means to me. ❤️ We love you Khyri!!"- Words from his mom Dezana
Prayers and donations would greatly be appreciated for Dezana Ware and Baby Khyri as they have a very long road ahead of them.
Any prayer or donation is not too small. We appreciate and thank you in advance.
Please share!
"Baby boy you are so strong mommy is so proud of you ❤️ I ask for everyone to continue to pray for Khyri and him being able to breathe on his own, clear his air ways on his own and to not need the ventilator anymore. Every week we have a care conference that i dread, they always start off by telling me the good and how he’s progressing and what they didn’t expect then deliver the not so good. So far he’s opened his eyes a few times, grabbed my fingers, regulated his own sodium and sugar levels and every now and then when he’s not on pain management or sedation he’s breathed above the ventilator however it hasn’t be consistent enough for them to think he won’t need it going forward. They presented the idea of a Tracheostomy and my heart dropped. The said the breathing tube he has now isnt secure and can damage his vocal cords if left in for too long. They said to picture him possibly not knowing I’m his mommy, not smiling or even hearing his voice. I got real quite and to myself, I’ve went into the bathroom and cried a couple times and even punched the air a couple times.
Early this morning his breathing tube slipped out of place which doctors were warning me would happen and suggested a Tracheostomy again, then told me to think about if that would be the life I want and see for my baby and if not then to think about possibly letting him go. They’ve told me him all of a sudden being able to do this on his own over the weekend would be unlikely. Even though they don’t put a time limit on him they in some ways to me put a time limit on him based upon their science and their experience. I know it’s doctors jobs to deliver the hard news but it’s also mommies job to stand firm on my faith and know that God can do the impossible. He WILL breathe on his own, he WILL clear his own airways and he WILL have a meaningful quality of life. I’m not going to act like this is easy by any means because it’s not but what I will say is that I’m expecting a miracle and in Gods timing not doctors. I will not give up on my baby he has fought too hard and God knew my baby before he was placed in my womb and he is an intentional God he doesn’t do anything by mistake even though I can’t see it clearly now I know he is doing something amazing. I ask everyone to continue to stand with us in prayer, sending positive vibrations and energy because we definitely feel it. I can’t wait to see the works God does through my child. Thank you everyone who has reached out to me and been so genuine and caring you don’t know how much that means to me. ❤️ We love you Khyri!!"- Words from his mom Dezana
Organizer and beneficiary
Dayjah Ware
Organizer
Reno, NV
Dezaná Ware
Beneficiary
