Medical Equipment for Kaden

Let me tell you a story about a boy. It’s not a short story and it’s not finished yet, but it’s important for me to tell. It’s about a boy that is important to me, a boy that I deeply love.

Kaden Micah is my son. He loves his therapy dogs, horses, video games, go-karting, the Seattle Seahawks and Oregon Ducks. Most recently he’s fallen in love with everything pugs. He is a sweet, cheerful eleven year old boy who has already faced more than most are asked to in a lifetime. At two he was diagnosed with autism. At four, epilepsy. When he was five we discovered that he was a carrier of a rare genetic mutation, one that singled him out from all other recorded cases and was the only one in the entire genome database with that specific mutation. Doctor’s appointments, hospital stays, physical therapy, speech therapy, occupational therapy, medication management, eating programs and behavior programs all became our new normal.

Again, my son is just eleven. He currently lives in Texas with his mother where she faithfully cares for him day in and day out. I provide as much support as I am able from a distance. Together, with our families, friends and his treatment team, we continually work toward helping him live a life as close to normal and as enjoyable as possible.

Several weeks ago, Kaden had a significant change in status. He began experiencing longer than usual seizures, sometimes losing consciousness, intermittent loss of vision and weakness to the point of being unable to walk. He has fallen and hit his head on more than one occasion as these symptoms appeared suddenly and without warning. He was admitted to the children’s hospital where after extensive testing, the medical team determined that in addition to his other conditions, Kaden is suffering from ataxia. This is a rare condition involving the brain and nervous system that affects balance, coordination, speech, vision and swallowing.

Kaden’s condition has stabilized but he continues to experience weakness, falling and swallowing difficulties. His doctors have advised that from this point on, he will need to have a wheelchair and a five point harness booster seat on hand at all times as they cannot predict when ataxia symptoms will strike. He needs this equipment as he easily weakens and is no longer able to ambulate on his own for normal periods of time. He will continue to undergo testing to determine the cause of the ataxia in hopes of finding some form of treatment that will help him to recover.

As I said, this is not the end of the story. This is the part where I pause to humbly ask for help. We’re doing all that we can but the medical bills and equipment needs are overwhelming all of us. My request is simple. PRAY if you will, give if you can. I love this boy with all of my heart and I know that the God I serve loves him even more. We’re trusting in Him to provide for these needs and to walk with us on this difficult road. If you are able to be a part of our story, all I can say is a heartfelt thank you.

Donations

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  • Ruhama Sosnow 
    • $18 
    • 33 mos
  • Anonymous 
    • $300 
    • 42 mos
  • Anonymous 
    • $50 (Offline)
    • 42 mos
  • Nancy Leopold 
    • $20 
    • 43 mos
  • Anonymous 
    • $500 
    • 43 mos
See all

Organizer

Brad Cramer 
Organizer
Amity, OR
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