<div>I don’t know if there is a “good” way to do this. We are living a nightmare. Hendrik and McKinley have a progressive metabolic disease. There is no medication and no cure. It is “comfort care” and that’s it. Hendrik’s recent mri was far worse than we anticipated. The state’s largest children’s hospital- MUSC isn’t 100 sure what it is exactly, but are sending both of them to CHOP(Childern’s Hospital of Philadelphia) to get the best care possible. So please be patient with us as we navigate this nightmare and struggle with anticipatory grief. Please be patient with them and their difficult behaviors because inside they are fighting for their lives. Please understand we are doing everything we can to hold our family together and also enjoy every moment the best we can.
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<div>We appreciate any and all donations to help cover medical bills and more as we navigate care, travel, and hospital stays. If you are not able to donate financially, we absolutely understand - please add them to your prayers for comfort, peace, and understanding.
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<div>7/22/25 Update - Everything feels like it is moving at a snails pace.  CHOP is really slow on their admin side for kids without a concrete diagnosis.  And the best CHOP has is “leukodystrophy of unknown etiology” Anyhow these cuties will be going to Philadelphia /Chop in Sept for a few days of appointments and then they will go back again in Oct/Nov. We just filled out all the paperwork for the Undiagnosed Diseases Program- so they are officially in!  That is huge since the UDP is very selective and most cases do not get accepted. And then even after that they usually take 12-18 months to make a plan and get kids seen.  BUT they have already submitted testing prior authorizations to insurance and will see them asap (for their team that is)
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<div>Their MUSC doctor also sent referrals out to Boston Children’s and Children’s National on case they move faster or offer more options for Hendrik and McKinley. 
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<div>August will be a whirlwind with school starting and so many appointments in Charleston. We have neurology, motility GI, cardiology, endocrinology, metabolic genetics, and ophthalmology all within a month.  All in Charleston. We still have PMR, therapies, developmental peds, and psychiatry here in Columbia that month as well. 
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Anonymous

Barb Van Grootheest

Fae Kokke

Kimberly A. Cardinale

Heidi Sunderland

Claudia (CeeCee) Duncan

Michelle Capps

Joleen Thomas

Ann Smith

Sarah Howard

Eric Paul

Matthew Warren

Carolyn Friedman

Abby Webb

Clare Heinz

Lori Gunnink

Tina Kanthak

melissa hicks

Medical Bills for Hendrik & McKinley

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

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NextDoor Share Option Users

Fundraisers with Reactions feature capability

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US + Non-charity COs Only

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fund country is US and user language is English

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Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

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Money Box Donation List Prompt Experiment Audience

GoFundMe Employees

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Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

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fintrac_cad_idv_form_v2 audience

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fallback mode accounts

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p2p legacy startfundraising page

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UKCharities

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US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

NPO upsell education category

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

NPO recommendations prod

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Native 11.4.0 and above

UC Tipping v20250107

Users Receiving Braze KYC Validation Failed

ai_title_page

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openai

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Native 11.3.0 and above

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GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

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NPO upsell animals category

NPO upsell disaster relief category

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

NPO upsell essential needs category

NPO upsell medical category

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Localized Currency

NPO upsell cancer category

v11.5.0 and above

testAudience

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Survicate

appVersion is at or above 12.8.0

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CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Medical Bills for Hendrik & McKinley

Still $15,300 to go. Help us build momentum.