It saddens me to have to do this.. I’m not the type of girl to ask for help. I typically figure everything out on my own. My daughter, McKinley Jo, was born April 16, 2024. After being home just shy of 48 hours I had to rush her to the emergency room where she was later air lifted to Riley Children’s Hospital - an hour away from home. When she got there, she was diagnosed with GBS meningitis & rhino virus at JUST 4 days old and she was having uncontrollable seizures. They had her on 5 different seizure medications which of all were maxed out for her weight. With that, they still couldn’t get them under control. 3 days of her being there, they had told me she wasn’t going to make it. They were expecting me to pull her breathing tube, but as a mother I knew she wasn’t done. They said from the seizures - she no longer had any brain activity, but I knew she did. She would still suck on her tube (still sedated at this time), she would grab my finger, and open her eyes. A few weeks later, I decided pulled her tube as they told me would be my best option. I pulled it on May 16, her one month. They said she would pass fairly quickly due to her not breathing on her own BUT she didn’t. Her stats were better off the machine than on. 18 hours off the vent, we were sent home. We were at Riley just shy a month and they discharged us and sent us home with a Hospice nurse who comes once a day. We were home for just under 2 weeks and I noticed she would scream & cry in pain when I moved her left hip. So I talked to her hospice nurse who then made an appointment for her at Riley… come to find out she has a rare infection in her left hip bone called “septic arthritis of the hip joint” and to fix it McKinley would need surgery. With that, she also has fluid in her hip joint. Without the surgery it may spread to her blood which is toxic and would take her life but McKinley having surgery when she’s already high risk is a very hard decision that ultimately I’m going to have to make. With all this going on I obviously can’t work. I don’t have the option with a sick child. Please find it in your hearts to donate or help where you can! I love my daughter so much and all I want to do is see her get better. If you can’t do anything, that is perfectly okay too! please just pray and share. She is loved by SO many people including friends , family , and associates of the family. Thank you so much.