McHaley Medical Expenses

McHaley is a beautiful spunky 10 year old girl. She lives in Independence, Oregon with her mother Vita Ramos and sister Joel Rodriguez. She is currently in the 4th grade, and attends Ash Creek Elementary School in Monmouth Oregon. McHaley back in November of 2017 was diagnosed with a very rare autoimmune disease called Systemic/ Morphia Scleroderma. It's so rare that fewer than 300,000 people in the world have some form of it, but less than 200 people in the world have her specific variety. The disease is incurable and will eventually result in an early death, but with proper treatment can be managed and her life can be extended. It causes a rapid stiffening and hardening of tissues and organs throughout her body. Because of the rarity of the disease there are no drugs specifically designed to treat it, but there are medications for other illnesses that can be used to ease her symptoms and slow the progression. Unfortunately because these medications were designed (and approved by the FDA) to treat other diseases, most insurances will not pay for them to be used to treat McHaley. We are actively working with her doctors, the hospital, and the drug manufacturers to get these treatments at the most affordable cost possible but they are still quite expensive. This is where you come in. While we hate to even ask, there is no way that we can continue to afford these bills on our own. Please help us extend both the length and quality of McHaley's life, allowing her to live the most normal life possible for a child. On behalf of McHaley's family and friends we would like to thank you all for your love, support, prayers and any donations.