Maxwell has a rare medical condition called thymidine kinase 2 deficiency syndrome (or TK2d). It is a genetic disorder that causes progressive weakness of the body’s muscles (myopathy).
Maxwell became ill at nine months old, firstly with Tonsillitis, which he was treated for in hospital. While recovering, Maxwell had a nasal gastric tube inserted into his stomach for feeding. Unfortunately his last feed was rushed resulting in him choking and filling a lung with milk. The aspiration along with infection was the catalyst to activating his mitochondrial-disorder. The result switched off seventy per cent of his muscles instantly.
Maxwell is totally dependent on others in every aspect of daily life. He is supported by twenty-four-seven love and attention by family, friends and an amazing care team.