Jen's story of Max:
Max was born at 28 weeks by emergency C-section the day before his birth the very active baby inside me quit moving and after a day of cold showers, hot baths and sweet treats to try and stimulate him, I was on my way to the Civic Hospital in Ottawa to be checked. Max was born 8 hours later, 3 months too early.
Due to Max’s low birth grams, And how ill he was he suffered an inter cranial bilateral hemorrhage that has resulted in a diagnosis of cerebral palsy, specifically mild left hemiparesis. To spite all odds Max learned to walk and talk and write his name and by age 7 he was even able to ride his own mini 4-wheeler.
At age 9 Max began having seizures, this month as we celebrate his 19th birthday, his seizures continue to be uncontrolled and have had a very significant impact on his quality of life. With a list of seizure meds numbering 15 tried and failed, he remains on 5 anti- seizure meds and continues to have 5 or more seizures daily. This has taken a toll on max both physically and cognitively. The meds are sedating, causing severe fatigue, they have hindered his appetite and cause memory issues. The risk of falling due to a seizure prevents Max from participating in many day to day activities.
We have had the opportunity to consult with a Doctor in London Ontario and Max is a candidate for a surgical procedure to receive a Vegas Nerve stimulator. The stimulator will send electrical impulses into the brain that will help reduce seizure activity. It is not a cure for Max, but it may significantly reduce the number of seizures he has daily, enabling max to reduce the number of medications he takes and ultimately increase his quality of life.
To spite his daily seizures, of 5 or more, Max still enjoys studying anything that is Star Wars and watching YouTube videos of anything Nerf. He loves to go out for coffee and walk through the toy departments at any store to see what is new in Lego and all marvel comic toys and of course anything that is new in the star wars collection as well. This surgery will hopefully help Max be able to explore more things around him, without the fear of multiple seizures.
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