<div>To follow Max's story, visit us on TikTok at @miracleformax, or on Facebook at A Miracle For Max.
</div>
<div><br />
</div>
<div>This is Max. When he was born, everything was perfect. Our happy little boy was a dream come true, and we had no reason to suspect that anything was wrong.
</div>
<div> 
</div>
<div>By ten months, we realized he still hadn't learned to sit. He couldn't figure out how to swallow solids. Something was off. We began our journey to figure out why sweet Max was struggling to hit basic milestones.
</div>
<div> 
</div>
<div>At 16 months old, we received his devastating diagnosis - TBCD disorder, a fatal neurological condition with a life expectancy of only a few years and no known treatment. Our hearts were broken.
</div>
<div> 
</div>
<div><strong>Our only hope is a longshot: to generate enough funding privately to find a cure. </strong>
</div>
<div> 
</div>
<div>There's still hope for him if a treatment can be found quickly. He's currently attentive, social, mobile, verbal, and his brain damage from the condition so far is relatively minor. Once brain tissue is lost, it's almost impossible to retrieve, so time is brain for Max, and we are fighting the clock every day.<br /><br /><img src="https://d2g8igdw686xgo.cloudfront.net/62113453_1640119571414395_r.jpeg" alt="62113453_1640119571414395_r.jpeg" width="100%" media_type="3" />
</div>
<div> 
</div>
<div><strong>What is TBCD Disorder?</strong>
</div>
<ul>
<li>TBCD disorder is a genetic disorder that is neurodegenerative and fatal.
</li>
<li>Most kids lose all purposeful movement by age 4, and the majority die by age 5. There's currently no treatment or cure.
</li>
<li>TBCD disorder is extremely rare. Less than twenty children have been diagnosed. Only a handful are alive today. It's called an "orphan disease" because it's too rare to generate scientific or pharmaceutical interest.
</li>
</ul>
<div> 
</div>
<div><strong>How will my donation be used?</strong>
</div>
<ul>
<li>Donations will be used toward medical research for Max. Bespoke treatments for orphan diseases are outrageously expensive (in the hundreds of thousands or even millions of dollars) and are not covered by insurance.
</li>
<li>The gene therapy being worked on at Nationwide Children's Hospital will require about $2,000,000 in funding.
</li>
<li>Orphan diseases are often passed over for research by investors, academics, and private and federal grants alike because time and money flow toward causes with large communities. The message has been very clear: <strong>unless we fund the money ourselves, we're on our own</strong>. Unfortunately, we're not wealthy.
</li>
<li>Because TBCD is a monogenic disease, any breakthroughs or <strong>discoveries made for Max are likely to benefit other children with TBCD</strong>. We pledge to keep an open line of communication with all TBCD parents and researchers and to share any information we find with anyone else affected.
</li>
</ul>
<div> 
</div>
<div><strong>How can I help?</strong>
</div>
<div> 
</div>
<div><em>Donate</em>
</div>
<div>Every dollar helps.
</div>
<div> 
</div>
<div><em>Fundraise</em>
</div>
<div>Are you affiliated with an organization that might be able to help? Restaurants, stores, museums, and public attractions can all fundraise very effectively with lightweight campaigns.
</div>
<div> 
</div>
<div><em>Spread the word</em>
</div>
<div>No money or time? That's okay. Can you spread the word? Follow our story on social media. Put us in touch with any media contacts you might have. Share our posts. Tell your friends. Stick one of our stickers on something. Literally <strong>anything helps</strong>.
</div>
<div> 
</div>
<div><em>Treatment</em>
</div>
<div>Are you a doctor or genetic researcher interested in a case study? Are you working on something potentially applicable? <strong>We would LOVE to meet with you</strong>.
</div>
<div> 
</div>
<div>Please contact <strong>helena </strong>with any inquiries.
</div>

Lynn Zubkow

Anonymous

Arnelle Burg

Angie Falzoni

Toni Broekema

Kathleen Keller

Melissa Mayo

Emily Crawley

Melissa Jones

Robin Hoshino

Nathen Kessel

Leigh Mastrota

Stârceanu Ioana

Cara E King

Max's Miracle: Searching for a Cure for TBCD

platform

Platform is iOS

Android

Adyen Google Pay Development Audience

$opt_dummy_attribute

English only

Deprecate Stripe Legacy

dyn_template_ids

Adyen V6 Bene Transfer & MyMoney Campaign Organizers - test01

Bene transfer V6 and AdyenV6MyMoney Campaign Organizers - production

OneTrust next-app audience

fundCountryCode

NextDoor Share Option Users

Fundraisers with Reactions feature capability

fundCurrencyCode

US + Non-charity COs Only

locale

fund country is US and user language is English

personId

comms-internal-person-ids

Enhanced Story Experience Users

Suggested Goal Experience Users

user language is English and fund country: US, AU, DK, FI, IE, NO, SE, CA, GB; 

Poster share - new funds eligible (newest 9/18)

Streaming widgets beta user

paymentProcessor

3DS payment method

user language is English and fundCountry: US, AU, DK, FI, IE, NO, SE, CA, GB; 

GoFundMe Employees

ipAddress

Mark Rieth IP Address

Version 9.2.0 and above

Fund is in English speaking country

desktop

Android v12.11.0 and above

Platform is Android

paymentMethodType

checkoutType

Payment method type group to be vaulted on success

admin pr kit prod

EUR Donation Upsell

Share Text generation Skip Fundraiser

(prod) new funds eligible for amp12 (UGC gallery)

fintrac_cad_idv_form_v2 audience

paymentProcessorAccountId

fallback mode accounts

proCampaignId

p2p legacy startfundraising page

AMP24 New Funds Only PROD (DO NOT MODIFY)

countryCode

charityId

UKCharities

Federated Search Internal Testing

route.pathname community

US Donation Upsell audience 

Auto Thanks Feature Audience

Supporter Comments Eligible Funds

International Only

fundId

braze fundraiser group 

Payment Identity Transfers ATO Risk Check (Targeted) - Production

Fundraiser Saved Payment Method Rate Limit Bypass (Production)

leaderboard-partner-id-audience-givepanel

Version 9.2.1 and above

AUD Donation Upsell audience

fundraiserCountryCode is US/EN

Active Fundraiser - Smart Default Cadence

DAF Internal

Vault on success card payment method

Platform is iOS v11.0.0 and above

Desktop users

Person ids

United States (US) users

allow yuno fundraisers for test

Mexico country code

Posters INTL

NPO Profile Opted-In

iOS at or above 12.4.0

non-US recurring donors

Canada Campaign Owner Group

Fundraiser Without Meta Link

Scheduler payment tester gorup

charityCommunityId

Charities allow to be claimed unclaimed (PRD)

Canada (CA) users

currencyCode

UC Tipping v20250115 International

pymk_production_xplr_fe_team

Android at or above 12.2.0

Profile photo entry point audience

smart goals (fundraiser/manage) on test01

Activity Tracking v1 Beta Testing

writePath

Stream Notification

start gfm intl allowed locales

Platform is iOS v11.2.0 and above

unclaimed charities

prod_ach_audience

AI Chatbot Audience

amp13 only new funds (prod) (anyword auto)

UC Flow Enabled (Prod)

Payment Identity Beneficiary Verification - Production

shared notification bell audience

Custom users

ach frontend audience

Android v11.0.0 and above

Users Receiving Payments Paused Notifications

smart goals test01

Manage Coach - US English Organizers Only + new funds only

Team EGG - IP Address list

Fundraiser Without Instagram Deep Link

Native 11.4.0 and above

UC Tipping v20250107

Users Receiving Braze KYC Validation Failed

Native 11.3.0 and above

Influencer - Prod

US fundraisers and US users

ai_title_page

anyword

openai

control

manual_entry

userEmail

template_id

userId

fundUrl

isCharityCo

email

appVersion

shouldBucketIntoExperiment

partnerId

donationCadence

isActiveFundraiser

isPartner

isMobile

npoProfileOptIn

fundIsLinkedWithMeta

hasSessionDonation

isCampaignOwner

fundHasInstagramDeepLink

Native 11.4.0 and higher

New funds eligible - Video Sharing (PROD)

GB Donation Upsell audience 

Auto Thanks V3 Rollout Audience

Thank you V3 testing whitelist

isRecurringFriendly

Is Recurring Friendly

Excluded funds - Video Sharing

Logged In Users

CH Donation Upsell audience

Android v10.6.0 and above

userCurrencyCode

Localized Currency

v11.5.0 and above

testAudience

pathname

Survicate

appVersion is at or above 12.8.0

Non-charity fund

isChallengeFundraiser

challenge-fundraisers

Payment Identity Launch Verification - Production

New funds eligible - Posters v2

CAD Donation Upsell Audience

Braze Email Tester

NPO Profile Opted-Out

iOS App Version

hasKnownDonors

PYMK has donors

iOS v12.3.0 and above

Max's Miracle: Searching for a Cure for TBCD

Still $1,848,186 to go. Help us build momentum.