Max's expenses- helmet and other

Hello friends and family! As many of you know, Max was born with a rare, genetic disorder called NKH- NonKetotic Hyperglycinemia or glycine encephalopathy. For Max, the accumulation of glycine in his body has caused seizures, hypotonia (low muscle tone), and developmental delays. We have decided to start a gofundme to cover the cost of his helmet and a few months worth of cbd oil. His helmet cost $1500 and was not covered by insurance. It is needed for his torticollis caused plagiocephaly. His  medicines for seizure control currently costs at least $75 a month out of pocket. We do a lot of things for Max that we pay out of pocket for...and with so many people reaching out wondering how to help, this really is the best way at this time. We love you all so much and appreciate all of the love and support already received.

Donations

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  • Lana Andrews 
    • $100 
    • 39 mos
  • Shane Walker 
    • $1,000 
    • 39 mos
  • Amy Scott 
    • $100 
    • 39 mos
  • Sheridan Culver 
    • $50 
    • 39 mos
  • Brandy Schuster  
    • $25 
    • 39 mos
See all

Organizer

Monica Capulong 
Organizer
Holly Ridge, NC
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