Maxim Dreams to Walk
Donation protected
Maxim Dreams to Walk
Maxim Dreams to Walk is raising funds for a specialized surgery for five-year-old Maxim, who has cerebral palsy. The operation will alleviate some of his pain and provide him with a chance to walk and to gain some independence. Please help give Maxim a future full of hope!
About Maxim Dreams to Walk
Maxim is our amazing five-year old son.At the age of 1,5, he received a diagnosis of Periventricular Leukomalacia (PVL), Cerebral Palsy,spastic diplegia
Cerebral palsy results from an injury to the brain and affects the muscles and a person’s ability to control them. Each case of cerebral palsy is unique to the individual due to the type and severity of the brain damage. In Maxim’s case, it affects motor function, balance, posture, coordination and causes spasticity (tight, stiff muscles) of the limbs.
Maxim's main fight is against constant muscle tightness (spasticity). While CP itself isn’t degenerative or progressive, spasticity is!
As time goes by, can result permanent deformities in Maxim's bones and muscles that cannot be fixed.
We cannot accept this as our little boy fate.
This is why it is so important to reduce or eliminate the spasticity at an early age.
Our goal for Maxim
We are raising money for Maxim to have a life-changing surgical procedure called Selective Dorsal Rhizotomy (SDR). After a lot of research and speaking with expert doctors, we concluded that SDR surgery is Maxim’s best chance to walk and become more independent. Without it, we fear that spasticity can win
SDR is performed at St. Louis Children’s Hospital in St. Louis, Missouri, by internationally renowned neurosurgeon Dr. T.S. Park. The surgery consists of locating the nerve roots in the spine that are very spastic and cutting them. This will reduce or eliminate Maxim’s spasticity permanently and give him the chance to walk. Dr. Park has been performing SDR for 30 years and concluded over 4,000 surgeries with a 100 percent success rate. Of all the surgical procedures currently done on patients with cerebral palsy, Dr. Park’s SDR has undergone more scientific scrutiny than any other.
Your help really counts! Here’s what your donations will help us achieve…
The surgery and rehabilitation we are hoping to provide for Maxim is very expensive and is not covered by our health care system. We as a family have worked very hard to provide everything we can for our son, but we can’t do this alone. We need your help.
We are hoping to raise $66,000 US for the SDR surgery in St. Louis and related expenses
After surgery, Maxim will need physiotherapy 5 times a week for the first year. This will be our next goal.
Now the main thing is to raise funds for the operation
This operation will give Maxim the opportunity of a lifetime – the chance to walk, and to live a relatively pain-free life.
Thank you! With the love and support of our family, friends and community, we are hoping to make a little boy's dream come true.
If you would like more information on Maxim Dreams To Walk, please contact us here:
Facebook:
https://www.facebook.com/profile.php?id=100009887800842
About SDR:
http://www.stlouischildrens.org/our-services/center-cerebral-palsy-spasticity/about-selective-dorsal-rhizotomy-sdr
Maxim's Story
hello everyone, i'm Maxim, i'm 5 years old and i really love walking outside, laughing and playing
unfortunately i can't walk and stand on my own because i have cerebral palsy, spastic diplegia
My mom's pregnancy went well but doctors started giving her the wrong medication and as a result her blood pressure started rising and one kidney was blocked
i was born prematurely at 31 weeks pregnant with a weight of 1320 grams with caesarean section and immediately came to neonatal intensive care unit under a glass cap where i stayed in it for 1.5 months
from the first days I was connected to the ventilator because one lung worked for only 20 percent and the other was not open at all, so I was stabbed twice with a special injection. I started breathing independently only after 17 days
also i was diagnosed with pvl form of brain damage which leads to movement disorders
I also had a congenital heart defect, a muscle defect of the interventricular septum, an open oval window
at 12 months I was diagnosed with co-occurring common paralytic strabismus.from 1 year and still wear glasses and also undergo regular eye examinations. Also, once a year I undergo a two-week eye rehabilitation course to improve my eyesight
This was devastating news to my parents and they decided to do whatever they could to improve my quality of life.
My parents committed to providing as much stretching and physiotherapy as I could tolerate, as well as working on my vision.From 5 months I started Occupational Therapy, Hippo Therapy, and Swimming. We also exhaust every medical intervention available to control my spasticity, such as painful inter-muscular Botox injection, and the use of ankle foot orthotics.
I work hard every day even though my muscles do not cooperate with me. As I've grown taller; they've gotten tighter and I have more muscle spasms. It’s painful and difficult to even stretch them. I know I have to be patient, but it is very hard!
I want to be able to do things that other people take for granted, like walking to the bathroom, holding myself upright, sitting down by myself, toileting, and getting dressed by myself. I also hope to one day chase my friends around the outdoors! That would be MY dream!
With your help and support, this surgery will give me the chance to achieve these goals!
upd.we have a date of operation March 2020
we have 45 days to pay the bill
your every contribution, regardless of size, is important,thank you sincerely
Maxim Dreams to Walk is raising funds for a specialized surgery for five-year-old Maxim, who has cerebral palsy. The operation will alleviate some of his pain and provide him with a chance to walk and to gain some independence. Please help give Maxim a future full of hope!
About Maxim Dreams to Walk
Maxim is our amazing five-year old son.At the age of 1,5, he received a diagnosis of Periventricular Leukomalacia (PVL), Cerebral Palsy,spastic diplegia
Cerebral palsy results from an injury to the brain and affects the muscles and a person’s ability to control them. Each case of cerebral palsy is unique to the individual due to the type and severity of the brain damage. In Maxim’s case, it affects motor function, balance, posture, coordination and causes spasticity (tight, stiff muscles) of the limbs.
Maxim's main fight is against constant muscle tightness (spasticity). While CP itself isn’t degenerative or progressive, spasticity is!
As time goes by, can result permanent deformities in Maxim's bones and muscles that cannot be fixed.
We cannot accept this as our little boy fate.
This is why it is so important to reduce or eliminate the spasticity at an early age.
Our goal for Maxim
We are raising money for Maxim to have a life-changing surgical procedure called Selective Dorsal Rhizotomy (SDR). After a lot of research and speaking with expert doctors, we concluded that SDR surgery is Maxim’s best chance to walk and become more independent. Without it, we fear that spasticity can win
SDR is performed at St. Louis Children’s Hospital in St. Louis, Missouri, by internationally renowned neurosurgeon Dr. T.S. Park. The surgery consists of locating the nerve roots in the spine that are very spastic and cutting them. This will reduce or eliminate Maxim’s spasticity permanently and give him the chance to walk. Dr. Park has been performing SDR for 30 years and concluded over 4,000 surgeries with a 100 percent success rate. Of all the surgical procedures currently done on patients with cerebral palsy, Dr. Park’s SDR has undergone more scientific scrutiny than any other.
Your help really counts! Here’s what your donations will help us achieve…
The surgery and rehabilitation we are hoping to provide for Maxim is very expensive and is not covered by our health care system. We as a family have worked very hard to provide everything we can for our son, but we can’t do this alone. We need your help.
We are hoping to raise $66,000 US for the SDR surgery in St. Louis and related expenses
After surgery, Maxim will need physiotherapy 5 times a week for the first year. This will be our next goal.
Now the main thing is to raise funds for the operation
This operation will give Maxim the opportunity of a lifetime – the chance to walk, and to live a relatively pain-free life.
Thank you! With the love and support of our family, friends and community, we are hoping to make a little boy's dream come true.
If you would like more information on Maxim Dreams To Walk, please contact us here:
Facebook:
https://www.facebook.com/profile.php?id=100009887800842
About SDR:
http://www.stlouischildrens.org/our-services/center-cerebral-palsy-spasticity/about-selective-dorsal-rhizotomy-sdr
Maxim's Story
hello everyone, i'm Maxim, i'm 5 years old and i really love walking outside, laughing and playing
unfortunately i can't walk and stand on my own because i have cerebral palsy, spastic diplegia
My mom's pregnancy went well but doctors started giving her the wrong medication and as a result her blood pressure started rising and one kidney was blocked
i was born prematurely at 31 weeks pregnant with a weight of 1320 grams with caesarean section and immediately came to neonatal intensive care unit under a glass cap where i stayed in it for 1.5 months
from the first days I was connected to the ventilator because one lung worked for only 20 percent and the other was not open at all, so I was stabbed twice with a special injection. I started breathing independently only after 17 days
also i was diagnosed with pvl form of brain damage which leads to movement disorders
I also had a congenital heart defect, a muscle defect of the interventricular septum, an open oval window
at 12 months I was diagnosed with co-occurring common paralytic strabismus.from 1 year and still wear glasses and also undergo regular eye examinations. Also, once a year I undergo a two-week eye rehabilitation course to improve my eyesight
This was devastating news to my parents and they decided to do whatever they could to improve my quality of life.
My parents committed to providing as much stretching and physiotherapy as I could tolerate, as well as working on my vision.From 5 months I started Occupational Therapy, Hippo Therapy, and Swimming. We also exhaust every medical intervention available to control my spasticity, such as painful inter-muscular Botox injection, and the use of ankle foot orthotics.
I work hard every day even though my muscles do not cooperate with me. As I've grown taller; they've gotten tighter and I have more muscle spasms. It’s painful and difficult to even stretch them. I know I have to be patient, but it is very hard!
I want to be able to do things that other people take for granted, like walking to the bathroom, holding myself upright, sitting down by myself, toileting, and getting dressed by myself. I also hope to one day chase my friends around the outdoors! That would be MY dream!
With your help and support, this surgery will give me the chance to achieve these goals!
upd.we have a date of operation March 2020
we have 45 days to pay the bill
your every contribution, regardless of size, is important,thank you sincerely
Organizer
Andriy Atamanuk
Organizer
Torres Vedras, Resende, Portugal
