The biopsy results of the mass of soft tissue in Mason’s right cheek came back. Thankfully, it is not cancer. However, we are not out of the woods just yet. Mason has a rare disorder called Langerhans Cell Histiocytosis - 1 in 100,000 children under the age of 15 get diagnosed every year. LCH acts a lot like cancer, but it’s not cancer. Here’s some info on it and then I will tell you about Mason’s case specifically (as much as we know currently anyway):
What is it?
- Langerhans cell histiocytosis (LCH) is a rare disorder in which the body makes too many dendritic cells. Dendritic cells are a form of histiocyte, or white blood cell. These cells play a role in the body's immune system. They can be found in the skin, lungs, stomach, bone, eyes and intestines.
What caused it?
- There is not enough information to know why this happens.
Can it be treated?
- Yes, there are ways to treat and cure LCH.
How is it treated?
- Depending on the placement of the mass of cells that have been built up and if they are attached to the skin or the bones the treatment could be just removing the mass or chemotherapy and other medications. The amount of chemotherapy that would be needed is also dependent on the placement and extremity of the LCH.
For Mason, we still will have to do more scans to see exactly what his LCH is like. They will do blood tests, an MRI, and an ultrasound and/or X-ray to determine if his LCH is in multiple places in his body and if it is formed in his skin or his bones or both. Right now we don’t know what his survival chances are because multiple factors that we don’t if he has them or not determine that. The doctor is going to see if he qualifies for a medical trial and has also let us know he will need chemotherapy for treatment. The amount of chemo and if we will be able to come home or not will also be determined by his scans to come.
He will most likely be treated with chemo for 6-12 months or longer depending on his condition exactly. I will update more as we know.
Donating here would help us with transportation, food, and other expenses as I am a stay at hone mom and Anthony will be missing work because we are an hour and a half away from home.
Most people with LCH survive. Mason will be another one who survives. He is a strong fighter and he is here to stay.
Thank you to anyone who donates anything and for any prayers
- Kaleigh Kinner
- Ernest Morris
- Kasey Wilder