My 7 year old son, Martin, was born with a rare congenital defect known as Caudal Regression Syndrome and Imperforate Anus. His medical care was grievously mishandled and as a result the pull-through procedure he had to repair his Imperforate Anus was botched. This rendered him incontinent with very little chance to improve. Because insurance would not approve corrective surgery outside our home state of Maine, my family was forced to relocate our entire lives to Colorado. The best Pediatric Colo-rectal Surgeon in the country, Dr. Alberto Pena, has agreed to take on Martin's care at Colorado Children's Hospital in Aurora. Martin had his first appointment on Monday, July 29th. To begin Bowel Management on September 13th, we will be in the hospital for at least a week. It took everything we had financially just to be able to get here. We are concerned about how we are going to cover the bills while Martin has to be in the hospital with one of us (missing work and losing income) for one to two weeks.
We have waited for years to see Martin finally get the treatment he needs to achieve continence and have a "normal" life. This little boy is missing out on school, extracurricular activities, sports, and sleepovers. He cannot do the things every little kid his age should be able to do and it breaks our hearts to see him held back this way because of one surgeon's carelessness. On top of that he just had to move 2100 miles away from everything and every one he knows, to a totally foreign place, just to get to the doctor he needs. It has been unspeakably hard for all of us. We just need a little help to get through this first part of treatment and on the other side is a whole new world of opportunity for the most deserving kid. Please, if you are not able to donate, just share this page and Martin's story. We need to raise awareness for any child in this country struggling with apparent AND unseen conditions. I hope one day fundraisers to get American kids the specialized treatment they need will be a thing of the past, but for now this is our only recourse. Thank you so much for your time and support.
- Holly Kearl
- First Congregational Church Portland, CT
- Norma and David Pennock
- Norma Pennock