"No man stands so tall as when he stoops to help a child." ~Abraham Lincoln~
My name is Michael. I organized this campaign to help my friend, Yana, whose child, Mark, has Moebius Syndrome. Little boy needs urgent eye muscle revision surgery. The family lives in Ukraine where GoFundMe isn’t supported but I live in New-York and have possibility to help Yana and to raise funds using this platform.
Ukrainian physicians don’t know almost anything about this syndrome. What is more they don’t have medical practice in this field. Boston Children's Hospital is ready to help little boy and make surgery
. On March 24th, 2017 Mark is scheduled an eye surgery and estimated cost is almost 26000$ upfront
. It is a very expensive surgery for the family as they are foreigners. That means that Mark has absolutely no insurance coverage. They need also additional expenses for the travel and accommodation during their stay in the USA. The family is using all of their own funds but unfortunately it is not enough. Please take a time to read Mark’s story from his mom, Yana…
When Mark was born(09/16/2015) he couldn’t suck, had crossed eyes and had no facial movement. I couldn’t believe that that happened with me and my baby. We’ve spent 1 month in hospital teaching him sucking. Mark was diagnosed with Moebius syndrome when he was 3 months old. Geneticist said that Mark had Moebius syndrome and never would be able to smile.
Moebius syndrome is an extremely rare congenital neurological disorder which is characterized by facial paralysis and the inability to move the eyes from side to side. It means that child can’t smile, frown, grimace or blink his eyes. It is a syndrome that has a damaged or undeveloped 6th and 7th cranial nerve. On average, there are 2-20 cases per million births.
There is no single course of medical treatment or cure for Moebius syndrome. Treatment is supportive and in accordance with symptoms. Surgeries are the most helpful way in our case. Now Mark is 1 year old boy and ready to start his struggle with this syndrome. On the first stage Mark needs eye muscle revision surgery
as he has congenital bilateral strabismus. This results in confusion and difficulty performing many tasks in daily life. He can’t look side to side with his eyes so he turns his head when he wants to look at something or someone. Mark still can’t walk mainly because his movements are not coordinated because of crossed eyes. But the most horrible thing is that his vision gets worse day by day because he uses only one eye for watching. This surgery will help straighten out his vision. Sadly, though the surgery will change his life, it is considered to be just cosmetic. On the second stage
Mark will need the most important surgery in his life, “Smile reanimation surgery”. As you can imagine not seeing your child smile is heart breaking for parents.
Having a child means you are willing to do all you can to ensure him to be healthy and happy. Dear friends, families and all kind-hearted people, I ask you to help Mark out in any way possible. Your constant contributions, large or small, are so very much appreciated. For Mark.To know more about the Moebius syndrome and what Mark should overcome watch here:http://www.thedoctorstv.com/articles/3004-help-for-boy-who-can-t-smilehttps://www.youtube.com/watch?v=FMoaLiVzbR8 General information about Moebius syndromehttp://moebiussyndrome.org/
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Lets help Mark together...