Manuela's Surgery 2017

Manuela is 12 years old. When she was four years old she was diagnosed with Ullrich Congenital Muscular Dystrophy. Ullrich is considered to be among the rarest types of Muscular Dystrophy.


Inspired by Manuela’s strength, her courage and her incomparable love of life, we decided to move to the Unite­­­­­­d States in hopes that she might have an opportunity for a better life here. We left everything behind and we started here from zero, but with the hope that we would find medical treatment for Manuela that might improve her quality of life. Finally, after two years, the day is approaching that represents our search for a miracle for Manuela.


We traveled light in baggage, but filled with our faith in God that Manuela’s spinal surgery at Boston Children’s Hospital will be a success. The surgery, which will take place on July 19, 2017 will improve her quality of life and improve the chances of her living the long and happy life that she deserves. The surgery will correct the severe curvature of her spine which has begun to affect her organs and her lungs, and consequently her ability to breathe. The movement of her spine has now impacted her lungs to the extent that she only has 16% of her lung capacity. Without the surgery, this will progressively and quickly become more severe. We have faith in God that the surgery will be a success and we know that Manuela continues to be part of God's greater plan because we need people like her to continuously teach us to see only the beauty of life without questioning, or blaming ,or complaining.

She struggles silently from her wheelchair against all types of adversity and pain that is impossible for us to comprehend since she never complains. With a smile that is always on her lips, she finds a way to make those around her smile and feel at ease and she never forgets to say “thank you” to friends and family who help her. We have no words to truly describe our feelings and our admiration and can only be thankful that we have been blessed to have been able to learn the true meaning of love and gratitude from such a special person. Today we are fighting for the chance to continue seeing her smile, with the conviction that the world needs more people like Manuela who, instead of being selfish like the rest of us, show only love and gratitude.

A parent can never be prepared for the type of surgery that Manuela needs. Family and friends have given so much of their time and energy and we now must ask for more. Please give from your heart. Give a blessing, a prayer, or a gesture of happiness from wherever you are. If you are able to help us financially, please do so in whatever amount you can spare.

Donations ()

  • Flor Emilia Escobar Bonilla 
    • $50 
    • 31 mos
  • Nancy and Ivan Jaques Garcia 
    • $100 
    • 31 mos
  • Monica Bhide 
    • $50 
    • 32 mos
  • Mauricio Hernandez y familia 
    • $100 
    • 32 mos
  • Jill Osman 
    • $25 
    • 32 mos
See all

Organizer

Magda Ramirez 
Organizer
Windermere, FL
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