Mandy Phipps Levens ALS Fundraiser

Help Needed.
(Please share but please note I have hidden Mandy and her family from this post in hopes to keep this a surprise for them)

Many of you know my cousin, Amanda Levens and many of you don’t. She is my cousin on my mom’s side, a few years older than me and I love her like a sister. We’ve been through a lot through our lives and she has let me tag along in my teenage years as her shadow. We had a lot of fun and got into a few shenanigans back in the day. Adventures we had in her Honda will always be some of my best memories.

Mandy has always struggled with her weight and some health issues through the years. She took measure to lose weight and try to live a healthier lifestyle several years ago. But a couple years ago she started to have some issues with balance and started to fall and needed help to stand back up. These occurrences started to become more frequent as time passed as she was falling more and more.

She went to different doctors, different rehabs all saying this part of the body was having issues or this part and on and on it went. She finally seemed to get started in a direction with some answers in May 2020. They still were saying she was complicated; I could have told them that from the start lol! This visit was the first that ALS was mentioned as a possible diagnosis. After being giving this news and time to process she was scheduled for therapy and to see doctors in May 2021 at the Duke ALS clinic. Since this was so far in the future, they were also giving the option to go to the ALS clinic at Baptist much sooner, so they chose that treatment route. So, in September of this year she had her first visit at the ALS clinic at Baptist. It was a very busy day for her, but they really got the ball rolling finally for her. She was able to get a new loaner wheelchair through the ALS foundation. She was lined up for a respiratory machine at some point to help her lungs to remain soft and pliable and she was placed on an OT and PT plan and goes back to them again in December.

So where am I going with this. I believe almost everyone has heard of ALS or Lou Gehrig’s disease. ALS, or amyotrophic lateral sclerosis, is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Eventually, she will not be able to walk or talk or breathe without assistance. There is no cure and the average life expectancy is 2 to 5 years. For all the time I have spent in this life with Mandy, sharing lots of memories and laughs I would like to help make the time she has left here on this earth as easy as possible. Beezer and Aunt Nancy are her daily helpers along with her children and family, but I would like to try and make daily life a bit less complicated. So, I have started this GoFundme page to raise funds to purchase Mandy a wheelchair accessible van. This would allow her to drive her wheelchair straight from the house into the vehicle without anyone having to help her in and out of the chair and in and out of the car they now drive. It will make everyone’s life easier and less stress on their bodies.

So, I have started this GoFundMe in honor of Mandy. Please help by donating or spreading awareness about ALS in general. Family is very important to me and I appreciate all the support our family and the community have always shown for our Phipps clan.

Donations

  • Anna Kirkman  
    • $50 
    • 14 d
  • LaDonna Fuller 
    • $100 
    • 14 d
  • Teri McLendon 
    • $50 
    • 15 d
  • Donna Shaw 
    • $50 
    • 15 d
  • Anonymous 
    • $30 
    • 15 d

Organizer

Lisa Andrews 
Organizer
Whitsett, NC

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