As many know, Kai is such a sweet and silly little boy that already has had trials he's had to overcome. Thankfully, our boy is strong and has faced any challege with the joy of the Lord being his strength. His sweet smile proves it.
Just a little back story: Malakai was born with a genetic disorder called Osteogenesis Imperfecta, or OI (Many know it as brittle bones disease). Ever since we found out he would born with this at 21 weeks pregnant, we have prayed and pleaded over our son. God listened and we were blessed with a healthy baby boy.
So far, OI has not been a trial. About 5ish months ago, Kai fell and broke his leg, but thankfully, it was a common break among toddlers, let alone and toddler born with OI. We give that up to the Lord as him being a normal toddler that landed wrong on his leg. His bones where bright white and strong in the xrays, and his leg healed perfectly in 4 short weeks.
Our main concern right now is his teeth. OI not only effects the bones in his body, but it effects a few other areas, his teeth being one. Kai's 4 top teeth came in at once when he was aroung 6 months old. So, we bought training toothpaste and a thomas the train tooth brush just like any normal parent. Within a year of that, more teeth came in, as usual, but the top four slowly began to disapear. He never took a bottle, nursed until he was almost two, but I was determined to brush his teeth and wipe his gums to prevent cavities: he ate his first piece of cake at his first birthday party, and his drinks are mainly whole milk and water. We brush his teeth twice: even three times a day depending on what he eats. we are diligent, but nothing is seeming to help. He grinds his teeth and they would just chip away. They were so soft that the two eye teeth have now chipped completely into his gums, and his middle two teeth have started to follow suit. They are becoming inflammed in his gums causing sensitivity and exposing the middle layer of his front tooth.
Long story short, we need your help. We have seen a few specialists and are confident that we have found a soultion for his teeth and a team of doctors that are amazing: and willing to help. Ultimately means surgery.
They would put him to sleep and remove the inflammed teeth and if possible, crown his front two teeth to prevent further infection and any damage to his adult teeth. They may not be able to save the front two teeth and may need to remove those as well. My heart hurts at the thought of that. His smile is so beautiful and lights up anyones day but his health is our first concern.
In order to have the surgery, which is not covered by our insurance, we have to pay in full before we schedule the surgery: which is around $4200 for the entire procedure including anesthesia and the actual crowns. It would not be a matter of concern if they would allow monthly payments, which we are more than willing to do, but they require full payment before they would even schedule the procedure. It is time sensitive if we are wanting to save those front teeth and prevent any further infection.
This is all we could think of in the time frame we are needing. It's incredibly hard to have a huge need as this, and we come to you with a humbled heart and gratitude. If you are unable to give, please just keep us in mind of prayer and maybe share this page.
Thank you so much for reading! We pray you are blessed!
- Melanie Denmark
- Elizabeth Satter
- Jean Kramer
- Mitzi Flippin-Tuck
- Sara Monoc
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