Hi, my name is Yuliya Prushak. I am extremely lucky to live in Canada, but the rest of my family are in Belarus (Eastern Europe).
Meet my nephew Makar. He is four, and a few days ago he said ‘dada’ for the first time.
When he was almost three years old, he was diagnosed with speech delay and autism spectrum disorder. His mom started looking for help straight away only to realize that in Belarus there’s absolutely no help from the government for such kids. There’s no institution which provides diagnostics, therapeutic care or trains specialists. There are no protocols of treatment for autism, instead, such kids are offered a disablement certificate and are left on their own. There are only a few dedicated professionals (trained overseas) who work privately and have long wait lists. Makar was lucky to get into ABA sessions and seemed to be making quick progress.
Until a few months later, on her 35th birthay, his mom was diagnosed with cancer.
Meet Nadya, my sister, Makar’s mom.
It took Nadya about nine months, 8 rounds of chemo therapy and 17 radiation therapy sessions to recover. All family’s financial and emotional resources were directed at fighting her disease. As they couldn’t afford professional help any longer, Nadya and her husband continued educating and developing Makar to the best of their abilities. Unfortunately, the boy was severely traumatized by the intense atmosphere at home and by his mom’s hospital stays and her not feeling well after the aggressive treatments she received. This inevitably hindered his progress.
Nadya is now free from cancer but full of worries. The time during which Makar wasn’t receiving help, the nine months that drained the family’s financial well-being and shook their emotional core is the time which must be made up for now. It is essential that Makar gets as much help as he can as soon as possible. Early intervention is his best chance for the future.
What needs to be done now:
1. Tomatis listening therapy. Makar’s biggest problem is that he has significant auditory processing issues, basically, he hears speech but doesn’t understand the message. Tomatis consists of a 90-hour prescribed protocol. This 90 hours is broken up into 4 blocks with a 3 to 4 week break in between. Each block costs about $ 600.
2. ABA therapy
3. Sensory integration therapy
4. Speech therapy
5. Functional Communication Training
(overall, Makar needs 6-10 hours of therapeutic sessions per week, each therapy costing around $20 per hour, which totals up to 200$ per week)
6. Medical treatment
7. Gluten-free diet
The family will be grateful for any financial support to ensure that Makar gets treatment. The goal of 10 k will cover the expenses expected in 2017.
We thank you in advance for your support, and, please, help spread the word.