Maeve needs you

Beautiful Maeve was born 2 weeks again with a rare skin disorder known as EB.  While studies are being conducted there is no cure currently.  She will need a lifetime of skin care and her insurance company is saying no to paying for everything that she will need in the way of skin protection and bandages.  Currently she is needing about 1000.00 per month in supplies.  As her parents learn more about how to take care of her, they have found that they need to replace windows in their house to make it more temperature controlled as that is what these butterfly kids need. 
Please consider helping this wonderful family and beautiful little girl on their journey of care for her.