We wanted to update this page since it has been nearly a year since we first began to notice issues with Mackensie. Since the initial diagnosis of lesions on Mackensie's brain in February 2018, Mackensie continues to deal with constant headaches and trouble with her vision. We have visited the children's hospital of Los Angeles multiple times, where some of the best doctors in their field have been trying to pinpoint the exact causes of Mackensie's symptoms. Our daughter is an incredibly tough little girl, and has had to endure seven MRIs, two spinal taps, and 1 CT scan, and not to mention the constant IVs, blood draws, and anesthesia administered at every appointment. According to her doctors, the results from these tests seem to indicate that Mackensie does have a mass on her brain, but given its location, it is too dangerous to conduct a biopsy to determine whether this mass is a tumor and if chemotherapy is required. To complicate matters, Mackensie's neuro-ophthalmologist believes the problems related to her vision and headaches may not be the result of the mass, and in fact could be two separate issues.
Unfortunately, even after a year we do not have agreement among her doctors or a firm diagnosis, preventing any type of treatment. But her symptoms have become worse, with her headaches becoming more frequent and painful and her eyesight deteriorating. The neuro-ophthalmologist has given Mackensie an eyepatch to wear for the time being to potentially correct the vision in one of her eyes, and has not ruled out surgery to correct the issue. This of course does not take into account the mass on her brain, which its potential longterm effects are still unclear.
Mackensie is an amazing and strong little girl, but this past year has been incredibly taxing on her and her family. The frequent trips to Los Angeles are incredibly expensive and force us to miss many days of work. If surgery, or potential future treatment will be needed, our stays in Los Angeles may become extended, further causing financial stress on our family. All we want is for Mackensie's pain to go away and know with full certainty the mass on her brain is not malignant and will not disrupt her growth and development.
We cannot thank everyone enough for their love and support over the past year. When this was first started we could not have imagined the hundreds of donations and well wishes by family, friends, and even complete strangers! With the constant medical bills, travel, and time away from work, we are worried about having the financial capital to provide Mackensie the full medical assistance and future treatment she may need. We are once again asking for any and all support you are willing to give that can be directly used to pay for our daughter's medical expenses . If you have questions about this process or about the campaign, feel free to e-mail us using the contact link on the campaign page.
This page will continue to be updated with each appointment. Our next scheduled trip to Los Angeles is in April, and we hope by that point some answers can be provided.
Skyler and Melia