Macee's scoliosis surgery

My daughter Macee, my pride and joy, my hero, was diagnosed with sever scoliosis July 26th. We had no clue at ALL that this monster had attacked her innocent spine. My heart sunk with the diagnosis and advise because of the late diagnosis, fusion surgery was our only option.

Being the stubborn and persistent person I am, I did not accept that and felt in my heart there must be something else we could do. I began researching, and with the help of FB and some amazing groups regarding adolescent scoliosis, I found a procedure called VBT. Long story short, it is not FDA approved yet due to its infancy of being practiced here in the US. Therefore, our insurance will not cover the costs involved.

This procedure will allow her spine to remain flexible and is much less invasive then the fusion. It will allow her to continue her love of softball and have normal teenage years.
There are a hand full of doctors who perform the procedure. We had a consult at the Shriners Hospital in Philadelphia on Sept 20th, just 2 days after Macee's 13th Birthday. She qualifies for VBT!!! Her surgery is now scheduled for November 29th. She will be required to stay in Philly for 10 days post op. I am excited yet scared. Relieved yet a nervous wreck! I know In my heart this is what is best for her and her future.

We are very fortunate to have this surgery at the Shriners hospital in Philadelphia, however there is still a lot of cost involved moving forward, in addition to what we have already paid out of pocket. She will be required to travel back to Philly for several follow up appointments. Travel, hotel, and time off work really add up. She will also have PT following the surgery.

We will do whatever we have to do to ensure Macee gets the best possible outcome with this fight against scoliosis. Which is why I have started this fund. Anything we receive above our expenses, will be gifted to Shriners. For without them, non of this would be possible!

I ask for all your prayers and positivity as we are moving forward on this journey. Any help at all is much appreciated.

Donations

  • Marilyn Bialek  
    • $200 
    • 32 mos
  • Anonymous 
    • $100 
    • 32 mos
  • Kathy Keithley 
    • $100 (Offline)
    • 32 mos
  • Kerri Stacionis 
    • $100 
    • 32 mos
  • Kelly gatton 
    • $100 (Offline)
    • 32 mos
See all

Organizer

Christy Wlodek 
Organizer
Poplar Grove, IL
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