Help for Hollie

On 20th June 2018, our tiny world fell apart when we received the news that no parent wants to hear, “your daughter has a brain tumour.”

Our daughter Hollie, who is 13, was a very happy, healthy and sporty young girl until approximately a year ago when we noticed a gradual decline in her health and ability. The resulting tests and MRI identified a rare brain tumour - Hypothalamic Hamartoma.




Hollie’s decline in health has accelerated as the tumour impacts on her cognitive ability in addition to different types of seizures.  Even with anti-seizure medication she continues to experience around twelve seizures daily.  The uncontrolled seizures and difficulties in her cognitive learning and memory have had a catastrophic impact on her life, particularly as a teenage girl with her whole life ahead of her. 

 


 There is a curable brain surgery but unfortunately this is not available in the UK on the NHS. We refuse to accept this and after our own research, we have recently been given the good news that Hollie is a suitable candidate for surgery in Texas Children’s Hospital, USA. Without this surgery Hollie will never be able to lead a normal life and this is why we find ourselves in the uncomfortable position of asking for help as the surgery comes at a huge cost.

We are determined to secure the best possible treatment for Hollie and we will do everything we can in addition to this page to fundraise. As a family we would like to thank you in advance for any help you can give us along this journey.

Please do not hesitate to contact us if you require any further information.



Thank you 
Julie & David

What is a Hypothalamic Hamartoma:
https://www.youtube.com/watch?v=iV883bRT93Q


What Is The Procedure:
https://www.texaschildrens.org/sites/default/files/FactSheet_HypothalamicHamartoma.pdf


The Charity :      
 http://www.hopeforhh.org/