Her appointment is scheduled May 1, 2018 and the bronchoscopy on may 2, 2018.
We have to travel from Oregon to Cincinnati, Ohio for this trip.
The reason we have to travel out of state for medical treatment for Ashly is that none of the specialists on the west coast have the expertise in total airway reconstruction that she needed to save her life or to monitor the unique Airways she has.
Ashly has severe tracheomalacia, laryngeomalacia, tracheal stenosis that she was born with due to her rare genetic disorder, Geleophysic Dysplasia.
Ashly has had 3 trachea and airway reconstruction in the last 4 years that saved her life and has extended her life. Her airways and trachea are the size of a 12 month old and are squashed. However, the narrowing of her airways are progressive due to her disorder and there is evidence of scarring in her throat area that has to be monitored...in case further intervention is needed to extend and maintain an open airway to keep her alive.
We are raising money for roundtrip travel expenses to ohio, motel accommodations, food and other necessities needed during this time.
Thank you very much for your prayers and any donations you donate.
DonationsSee top donations
- Emily Nielsen
- Burt Baldwin
- Burt Baldwin
- Angela Gatchell
#1 fundraising platform
More people start fundraisers on GoFundMe than on any other platform. Learn more
Expert advice, 24/7
Contact us with your questions and we’ll answer, day or night. Learn more