Logan's Hope
Donazione protetta
Logan is a 10 year old boy who needs your help! Logan suffers from Spastic Diplegia Cerebral Palsy. Spastic CP affects motor function and the ability to coordinate muscles properly, this is because of spasticity (tight,and rigid muscles). Diplegia means that his legs are primarily affected. Conventional treatments such as physiotherapy, botox injections and casting have done little to help Logan become independant. Logan's hope to walk is a surgical procedure called Selective Dorsal Rhizotomy. This miracle surgery performed by Dr. Park at Children's Hospital in St. Louis, Missouri will improve Logan's quality of life immeasurably.
The Selective Dorsal Rhizotomy surgery consists of locating the nerve roots in the spine that are very spastic and cutting them. Ultimately this will result in eliminating Logan's spasticity permanently, and give him the hope to walk. Dr. Park has been performing this surgery for 25 years, he has performed over 2600 surgery's and has a 100 percent success rate. Of all surgical procedures currently being performed on patients with cerebral Palsy, Dr Park's SRD has undergone more scientific scrutiny than any other (including orthopaedic). Spastic cerebral palsy is a neurological motor condition. It's caused by an injury to the brain before birth or shortly after birth. Cerebral Palsy affects the muscles and a person's ability to control them. The brain injury that causes cerebral palsy affects motor function, balance, posture, coordination and spasticity ( tight, stiff muscles) of the limbs. Increased muscle tone or spasticity, make it extremely hard for Logan to coordinate his muscles. Logan's muscles continually contract, resulting in painful, stiff, & rigid legs.
On March 7 2004 Logan’s journey began. He was born 14 weeks premature and weighed 1 pound 5 ounces. He required ventilation to breathe and a NG tube for nutrition. Logan spent 4 ½ months in the neonatal intensive care unit. He had 4 surgeries while there and struggled the whole time he was in hospital. On July 14, 2004 Logan was strong enough to come home. Logan came home still on oxygen and needing nursing care for about one year after. It was when we noted that Logan was not meeting his milestones that we returned to hospital. When he was about 1 year old we were told by the neonatal follow up clinic that Logan definatley had Cerebral Palsy. It was caused by a brain injury suffered shortly after his birth. We were not surprised but were at a loss for words.
Logan continued to make small gains over the next few years, but had many stuggles with eating and mobility. He was receiving phyisotherapy often and required botox and casting to help with the spacticity in his legs. Soon Logan started school but found kindergarten very overwhelming. The noise from the other children drove him a little crazy. However, he still loved going to school. It was then that we turned to our doctors to see what might be causing his distress.
We were shocked to find out that he was on the spectrum and had moderate Autism. In grade one he started getting one on one therapy with Erin Oak’s Kids IBI team (intensive behaviour intervention). This is when we really started seeing Logan succeed. Logan started to become stronger. Not wanting to use his walker anymore, we switched to quad canes. Logan started enjoy the small amount of indepenace that he had worked so hard for. In April 2013 Logan took his first independent steps. Was that ever a lot of work!
Since then Logan is starting to regress. Unfortunatley he is now unable to take independent steps, and can no longer even stand unsupported on his own. This is heartbreaking! We have seen him come so far, only to lose the progress he has made. This happens sometimes with children with CP, as they grow,skills change. This is why Logan needs to have Selective Dorsal Rhizotomy surgery.
Logan has had to overcome so many health challenges over the last 10 years, and has done so with such strength, and courage. Logan is an inspiration to me and I know to many others. Please help us reach our goal of $100,000! Help us give Logan a chance at independance, help us give Logan Hope!
Visit Logan's Facebook page for information on upcoming fundraisers or for more ways you can help.
https://www.facebook.com/Logans.hope.to.walk
The Selective Dorsal Rhizotomy surgery consists of locating the nerve roots in the spine that are very spastic and cutting them. Ultimately this will result in eliminating Logan's spasticity permanently, and give him the hope to walk. Dr. Park has been performing this surgery for 25 years, he has performed over 2600 surgery's and has a 100 percent success rate. Of all surgical procedures currently being performed on patients with cerebral Palsy, Dr Park's SRD has undergone more scientific scrutiny than any other (including orthopaedic). Spastic cerebral palsy is a neurological motor condition. It's caused by an injury to the brain before birth or shortly after birth. Cerebral Palsy affects the muscles and a person's ability to control them. The brain injury that causes cerebral palsy affects motor function, balance, posture, coordination and spasticity ( tight, stiff muscles) of the limbs. Increased muscle tone or spasticity, make it extremely hard for Logan to coordinate his muscles. Logan's muscles continually contract, resulting in painful, stiff, & rigid legs.
On March 7 2004 Logan’s journey began. He was born 14 weeks premature and weighed 1 pound 5 ounces. He required ventilation to breathe and a NG tube for nutrition. Logan spent 4 ½ months in the neonatal intensive care unit. He had 4 surgeries while there and struggled the whole time he was in hospital. On July 14, 2004 Logan was strong enough to come home. Logan came home still on oxygen and needing nursing care for about one year after. It was when we noted that Logan was not meeting his milestones that we returned to hospital. When he was about 1 year old we were told by the neonatal follow up clinic that Logan definatley had Cerebral Palsy. It was caused by a brain injury suffered shortly after his birth. We were not surprised but were at a loss for words.
Logan continued to make small gains over the next few years, but had many stuggles with eating and mobility. He was receiving phyisotherapy often and required botox and casting to help with the spacticity in his legs. Soon Logan started school but found kindergarten very overwhelming. The noise from the other children drove him a little crazy. However, he still loved going to school. It was then that we turned to our doctors to see what might be causing his distress.
We were shocked to find out that he was on the spectrum and had moderate Autism. In grade one he started getting one on one therapy with Erin Oak’s Kids IBI team (intensive behaviour intervention). This is when we really started seeing Logan succeed. Logan started to become stronger. Not wanting to use his walker anymore, we switched to quad canes. Logan started enjoy the small amount of indepenace that he had worked so hard for. In April 2013 Logan took his first independent steps. Was that ever a lot of work!
Since then Logan is starting to regress. Unfortunatley he is now unable to take independent steps, and can no longer even stand unsupported on his own. This is heartbreaking! We have seen him come so far, only to lose the progress he has made. This happens sometimes with children with CP, as they grow,skills change. This is why Logan needs to have Selective Dorsal Rhizotomy surgery.
Logan has had to overcome so many health challenges over the last 10 years, and has done so with such strength, and courage. Logan is an inspiration to me and I know to many others. Please help us reach our goal of $100,000! Help us give Logan a chance at independance, help us give Logan Hope!
Visit Logan's Facebook page for information on upcoming fundraisers or for more ways you can help.
https://www.facebook.com/Logans.hope.to.walk
Organizzatore
Kristie McNab
Organizzatore
Orangeville, ON
