Liza T. requires SMA treatment
Donation protected
Liza T. 2 y.o., Mazyr, Belarus. Please Help Liza to beat SMA!
This Gofund.me action is to help Liza T. to raise the funding needed for her Zolgensma treatment. Zolgensma is a gene therapy medicine for treating spinal muscular atrophy (SMA), a severe genetic disease affecting the central nervous system. It causes progressive muscle weakness and wasting. For this treatment to be effective, Liza should not weight more than 13.5 kg. We hope we have time to collect the necessary funds, since Liza at the moment is 8.8kg.
It is now a tough time for everyone, yet if you are able to spare some for Liza, please do so. Also please share this appeal widely in social networks and in your circles. Everything you can give would help!
Zolgensma is one of the most expensive medicines in the world. $2.5 million have to be raised by all who want to help Liza’s rare medical condition. Any help you can give will go a long ways towards this.
BACKGROUND
Liza is born on November 11, 2019. Liza has a rare genetic and degenerative disorder called SMA (Spinal Muscular Atrophy) type 2.
Liza was born as a healthy child and developed normally. Close to the age of one year, her mother had noticed that she wasn’t meeting some of the development milestones. This family turned to health care professionals for proper check-ups. Unfortunately, only in September 2021 after lots of tests it became clear that she has Spinal Muscular Atrophy type 2. In Belarus, this disease is not treated. The government health system only offers the palliative care.
At the moment, Liza still can walk a little and do some of kids daily activities. However, her gross motor skills have already started to regress. She is no longer developing according to age. Her hands are shaking, this presents a big challenge for her.
THE GOAL
By giving Liza this treatment, we can provide her an almost normal childhood so she will be able to play with her older brothers without major difficulties. If you are able to help Liza in any way, please donate. Please share this invitation in more networks so it may reach as many kind people as possible. Every single contribution means a lot for us. If you have any questions, please write to [email redacted]
Thank you so much for your kind donations!
This Gofund.me action is to help Liza T. to raise the funding needed for her Zolgensma treatment. Zolgensma is a gene therapy medicine for treating spinal muscular atrophy (SMA), a severe genetic disease affecting the central nervous system. It causes progressive muscle weakness and wasting. For this treatment to be effective, Liza should not weight more than 13.5 kg. We hope we have time to collect the necessary funds, since Liza at the moment is 8.8kg.
It is now a tough time for everyone, yet if you are able to spare some for Liza, please do so. Also please share this appeal widely in social networks and in your circles. Everything you can give would help!
Zolgensma is one of the most expensive medicines in the world. $2.5 million have to be raised by all who want to help Liza’s rare medical condition. Any help you can give will go a long ways towards this.
BACKGROUND
Liza is born on November 11, 2019. Liza has a rare genetic and degenerative disorder called SMA (Spinal Muscular Atrophy) type 2.
Liza was born as a healthy child and developed normally. Close to the age of one year, her mother had noticed that she wasn’t meeting some of the development milestones. This family turned to health care professionals for proper check-ups. Unfortunately, only in September 2021 after lots of tests it became clear that she has Spinal Muscular Atrophy type 2. In Belarus, this disease is not treated. The government health system only offers the palliative care.
At the moment, Liza still can walk a little and do some of kids daily activities. However, her gross motor skills have already started to regress. She is no longer developing according to age. Her hands are shaking, this presents a big challenge for her.
THE GOAL
By giving Liza this treatment, we can provide her an almost normal childhood so she will be able to play with her older brothers without major difficulties. If you are able to help Liza in any way, please donate. Please share this invitation in more networks so it may reach as many kind people as possible. Every single contribution means a lot for us. If you have any questions, please write to [email redacted]
Thank you so much for your kind donations!
Organizer
Yuli Nazarov
Organizer
Delft
