Lissencephaly brain disease
Donation protected
This is my son kian smith we’ve been fighting as parents since kian was born to try and find out what was wrong with a son the day of lock down we finally got answers from his brain scan that he had we got told that a boy has a rare brain disease Called lissencephaly brain disease a boy is terminally ill witch as you can imagine as parents and friends and family or very upset and his older siblings am setting this page up to try and get some things for a boy As equipment is so expensive and can only get so much funding and to make kian injoy the time he has with his older siblings and make so many memories and also to make his time with us as smoothly as we can am very great full for all the support so far from everybody. Kian is 2 in September he’s had a real tuff few months he goes a few weeks then always in hospital he’s had 36 admissions already but he keeps pulling threw he’s such a happy boy he’s a world he also has other health issues to deal with to. Thank you so much for taking the time to read.
Organizer
Chris Smith
Organizer
England