Lily’s Neuroblastoma has relapsed and she is back at Mott for treatment with her mom and dad at her side.
Three months after being declared NED (no evidence of disease) mom saw a lump under her jaw which then lead to several tests and scans. It was discovered that the cancer was back and in several areas including her legs, hips, chest, arms, collar bone as well as jaw. The tumor in her jaw bone has completely eroded the bone, this will cause mobility issues & already causes pain. She will eventually need reconstructive surgery to correct this (after we have disease under control), she has some enlarged lymph nodes (one was surgically removed last week), she has an area of disease by her left collar bone going into her chest, spots on her arms, legs & hips as well. Neuroblastoma does not have a set relapse treatment plan. This makes things tricky & scary. They have been told that it will be tough to beat it this time, that the chances are slight , but not impossible. So here they are, ready to fight...again. Only this time they have to fight harder, Neuroblastoma is a beast, it’s aggressive & it comes back with a vengeance. But they won’t give up & her doctors aren’t either.
A plan has been made. They need to get the disease under control, then need to get her into long term remission. This will be tough. But there are some options still.
The financial and emotional support has been an unbelievable help during the first battle over the past two years to which the family is truly grateful. The funds have been exhausted and we are looking to continue to support the family in any way possible to help make finances a burden they don't have to bear.
Lily and her family will never give up and are ready to fight alongside with the amazing team and family at University of Michigan Mott Children Hospital and all of you. Thank you for everything, it's not possible to get through this without each of you.