Liliana was born with a deformity in her left arm that has finally been diagnosed as Type II Radial Dysplasia. While she may not immediately appear disabled, she only has partial extension of her left arm due to an underdeveloped and deformed radius, and is missing muscles in both of her thumbs which will eventually require two separate surgeries. These deformities may just the tip of the iceberg, as radial deformities often show up in conjunction with several other deformities. In her most recent visit at Seattle Children's hospital, we have confirmed that her spine is deformed and will require treatment by yet another specialist, and she will need testing to ensure her heart and kidneys are not affected by this condition as well.
While we are very lucky to have great insurance and relatives to help us get to this diagnosis, we have a lot of traveling over months and years to come. We live in Pullman, WA, and the closest hospital we have found capable of treating her is Seattle Children's. This is a five hour journey from our home, and the expenses from these trips become considerable. Between work time lost, gas and car maintenance, food, and the occasional hotel stay, our little family is struggling. These expenses seem to be just out of our reach, and we would greatly appreciate any help we can gather together to help our daughter get the medical treatment she needs.
Those of you who know Liliana know that she is a true light in all our lives. We just want her to be able to live the comfortable life that she deserves.
For more information on Radial Dysplasia:https://kidshealth.org/en/parents/radial-dysplasia.html