Vanessa has a rare condition called CVID, Common Variable Immune Deficiency. This means her immune system does not have the necessary antibodies to protect against disease, making her highly susceptible to bacterial, viral and fungal infections particularly within the lungs, sinuses, and ears. CVID is extremly hard to diagnose because the symptoms (sinus infections, etc.) are usually misdiagnosed as the illness when the root cause is her immune system.
Vanessa was born with CVID but was not diagnosed until March 2016 at age 24. Throughout her childhood she accumulated several infections and food allergies and now endures the aftermath of the prolonged misdiagnosis.
Recently Vanessa was admitted to the hospital due to a consistently high heart rate of 170 (normal being between 60-80 beats per minute), high fevers of 103.8 degrees, muscle spasms, swelling, head aches, body aches, and now trouble breathing. Her symptoms are becoming very severe, all we know is she has an infection but without a diagnosis, treatment is unknown. She has been seen by 3 hospitals and all of them are unable to find the cause. She will be transferred to Seattle in the hopes of seeing specialists there that are more familiar with CVID that can give us an answer.
Each day that goes by her physical state is getting worse. Friends, Family, fellow Zebra Advocates I am asking for your help and support for Vanessa in any way that can be given. The funds would help travel expenses, medical expenses, support family staying with Vanessa, and allow for us to give Vanessa the care she needs. Anything to help contribute - $5, $10 would make a huge difference.
Lots of love!
Contact or follow Vanessa's story for more updates
- Vernon Lamoureux
- Jessica Chandler
- John Bruce
Organizer and beneficiary
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